Disability Justice and Violence Prevention Spotlight: Shelby Wade

Shelby Wade
Shelby Wade (she/her) is facing the camera and smiling and she is standing in front of a rock wall. Shelby is a white woman with long red hair and she is wearing a dark top with white designs.

What do you like to do for fun? Hobbies?

Play with my dog Clyde, play cards with my Husband, watch documentaries, and explore the Olympic National Forest which is right in my back yard!

 

What does disability justice mean to you as you practice primary prevention?

From my experience, this comes down to two things: Inclusive services and education, and dispelling myths about the autonomy and sexuality of people with disabilities.

What are some resources that you have created or that you just love that you want to share (articles, toolkits, etc.)?

Do you have a favorite prevention activity or strategy you use to achieve disability justice?

  • Education both within the community and to their counterparts. Because violence, especially gender violence, is a matter of control, ableism adds a further layer to our prevention efforts. If we do not make dismantling ableism, and other constructs of power, a core tenant of violence prevention education, we will not do justice for this community. In addition, providing comprehensive sex education to people with disabilities that incorporates components of self-advocacy and what constitutes abuse, is critically important.
  • I would also love to share a unique work group that operates as a recovery practice for all survivors of violence, but is especially empowering for survivors who are disabled. As a way to practice reclaiming control, consent, and respect, survivors work with service dogs; giving commands and watching the animals respond to their request produces a chance for survivors to reclaim their autonomy in a therapeutic environment.

Does anything about primary prevention need to change to bring disability justice to the world?

Many community-placed organizations fall into the trap of what Vu Le has called trickle-down-community-engagement. Vu Le describes this as organizations who (1) offer services because they can, not because they were asked for or needed, (2) educate and advertise their services but find that sectors of their community still choose not to engage, and (3) either do not measure their impact, or when they do, find little to no successful impact. To put it simply, “you can’t just give three drops of water to your rainbow carrots, wonder why they are not growing, and then complain about the lack of color in your salad” (Vu Le).

Earlier, I emphasized the description of these organizations as community-placed. This categorization comes from one of my professors at Harvard, Harry Harding, who discussed the difference between organizations as described above, who are simply placed in a community, versus organizations and services that are based in a community. Community-based organizations are informed by their community, intentional about services, and inclusive both within the organization and in how they discuss the issue and engage with their community. In order for sexual violence prevention to be effective within the disabled community, we must recognize that people with disabilities can make their own decisions and that they are not sexless.

Harmful myths often close the door to working with the community to educate about consent, self-advocacy, and safe sex. An example of this is demonstrated in a South Carolina middle school who invited my prior organization (shortly before I worked there) to come and give sexual violence prevention talks to their students. They had the prevention educator teach the same presentation to one grade at a time, one period after the next, the whole day. However, this disrupted the students in special education as it conflicted with their schedule. So instead of finding a different option, or tailoring the presentation to be inclusive of the learning styles of ALL students, the school had the special education class sit in on every single talk, the entire day. Not only did the school send the message to the special education students, and the rest of the school, that they were an after-thought, but they did not give the prevention educator the information and tools needed to provide a presentation that worked with all student’s needs. This event, reported to me by my organization when I came on board, made it evident how primary prevention efforts were missing the mark in serving the disabled community.

Where you practice primary prevention & disability Justice (location, organization, which levels of the SEM, typically):

I worked in primary prevention of sexual violence for three years as the Prevention and Education Coordinator for an adult crisis center in Charleston, SC. I also served for two years as the Chair of a three-county wide Sexual Assault Response Team (SART) in the low-country of South Carolina. Currently, I work for the Medical University of South Carolina’s National Crime Victim Center which is housed in their Department of Psychiatry. In my role as the Program Coordinator, I work on Project BEST, a state-wide collaborative effort to use innovative community-based dissemination, training, and implementation methods to dramatically increase the capacity of every community in South Carolina to deliver evidence-supported mental health treatments (ESTs) to every abused and traumatized child who needs them. In addition, I work in a similar capacity under a grant for the National Mass Violence Victimization Resource Center’s Training and Technical Assistance division. My violence prevention and advocacy work has continued both within this work and outside it as I independently pursue research on community-based primary prevention, response, and resilience.

Are you available for consulting?

Yes! Working with diverse populations eager to learn about and collaborate on program improvement and community engagement is my passion. My area of concentration focuses on violence prevention, particularly sexual violence, and how we can create intentional, equitable, and sustainable community prevention and response strategies and services.

How can people reach you?

sctwade@gmail.com or LinkedIn, Shelby Wade. Email is preferred.

Shelby’s biography:

Shelby first worked with people with disabilities in high school as a peer support for Integrated Learning Students with a range of disabilities from various cancers; autism spectrum disorders; blind, deaf, and hard of hearing; and many others. These students helped spark her interest in working with the community. Following high school, she worked with cognitively impaired students at supplemental education centers before becoming a behavior technician at an autism services organization. During college, earning a bachelors in sociology from Sonoma State in CA, Shelby became the lead behavior technician, the community group lead, and the trainer of all new employees on Applied Behavior Analysis (ABA) for her organization. She won awards for passion and for Interventionist of The Year. While she enjoyed the work, Shelby wanted to move on to spaces that allowed her to empower people with disabilities from a violence prevention standpoint, something she connected with through personal experiences. After moving across the country, Shelby began working at a local rape crisis center in South Carolina. There she learned where prevention work was failing the disabled community and where disability justice organizations needed support in violence prevention. During this time, she served as the chair of a three-county-wide sexual assault response team (SART) and went back to school to get her graduate certificate in Nonprofit Management from Harvard.

Shelby currently works for the National Crime Victims Center on two grants, one with Project BEST which seeks to provide evidence-based treatments to children and their families across South Carolina, and another under the National Mass Violence Victimization Resource Center where she is helping communities prepare for, respond to, and build resiliency after a mass violence event. Shelby’s passion for this work continues in her free time as she continues to research prevention efforts, write papers, teach, and provide consultation. Currently, Shelby is focused on neurobiology of trauma; inclusion as it relates to community engagement in violence prevention; program improvement in sexual violence organizations; and non-acute comprehensive medical advocacy for survivors of sexual violence.

A bit about her personally… Shelby is the wife of 8 years to her amazing partner, Jacob, who is an active duty member of the US Coast Guard. She is a dog mom to a 3-year-old, rescued, blue heeler mix named Clyde who is the best good boy there is. Shelby lives in the Pacific Northwest and enjoys going on hikes, listening to records, watching documentaries, and taking bubble baths!

Shelby Wade is the author of her interview. Cierra Olivia Thomas Williams is the interviewer and posted this to IDJ. 

Indiana Disability Justice Celebrates Three Years Together

April is Sexual Assault Prevention and Awareness month and the Indiana Disability Justice is celebrating entering it’s fourth year of collaborating statewide to end sexual violence with people with disabilities, including developmental and cognitive disabilities. The IDJ is a coalition of survivors of violence with disabilities, self-advocates, disability service providers, anti-violence coalitions, and caregivers who have a common goal of increasing holistic wellness of people with disabilities. IDJ strategies include education and advocacy, restorative and transformative accountability, policy change, and research that help to create inclusive and supportive environments to help prevent sexual violence.

The leadership includes Cierra Olivia Thomas-Williams (Indiana Coalition Against Domestic Violence), Skye Ashton Kantola (Consultant, Self-Advocate), Tammy Themel (AccessABILITY), Jody Powers (Consultant, Self-Advocate), Jennifer Milharcic (Consultant, Self-Advocate), and Haleigh Rigger (Indiana Coalition to End Sexual Assault and Human Trafficking). Together the leadership team works with the advisory council toward creating protective environments that enable thriving for people who are made vulnerable by systems inequity. IDJ 2021 goals include:

  1. Community Strengths and Needs Assessment (CSNA): reimplementing a survey tool to assess safety, independence, and sexual wellness of people with disabilities in Indiana who have experienced sexual harm;
  2. Organizational Assessment Tool: implementing a tool for use by organizations interested in preventing harm against people with disabilities, and identifying areas of improvement for disability services and opportunities for violence prevention;
  3. Educational resources: continue creating educational resources to empower people with disabilities in their self- and community-advocacy efforts, and educational resources to support service providers, caregivers, and businesses in working more effectively with people with disabilities;
  4. Resource Hub: host a website to house IDJ webinars, assessment tools, and blog sharing the voices of survivors with disabilities;
  5. Webinars: Implementing at least 5 new webinars focused on disability justice and sexual violence prevention;
  6. Evaluation: Developing and implementing creative, community‐building evaluation strategies to assess IDJ effectiveness and areas of improvement.

IDJ invites you to pick a protective environment and create or enhance the possibilities for positive and protective relations, organizations, and communities in service of an equitable society for people with disabilities, their allies, and everyone. Contact IDJ for coaching, training, and technical assistance at indisabilityjustice@gmail.com. Subscribe to the IDJ Hub to receive blog posts by survivors with disabilities, accessible prevention evaluation tools, and webinars that centralize disability in violence prevention.

From Zero to 1000: Accessibility, Inclusion, Connectedness with the IDJ Hub

Congratulations to IDJ, because in WE ARE THREE years old!!! [confetti explosions]

In December 2020, we welcomed more than ONE THOUSAND VISITORS from around the world. We started with an idea in 2017 that grew into a very successful Patreon Community in 2018. We needed to transition to the online Indiana Disability Justice and Violence Prevention Resource Hub in 2020 to reflect the growth in our capacity and reflect our commitment to continue to promote and enhance connectedness across movements, sectors, fields, and communities. We remain inclusive community owned and co-operated with the functionality of a website.

In the last three years, the IDJ established a mission, vision, and values, designed an online Disability Justice and Violence Prevention Resource HUB, developed and piloted two evaluation tools (the community survey and the organizational survey), published 30 posts on the Hub, organized and published 12 webinars, supported the development of a healthy sexuality speaker’s Hub, shared a toolkit written by a self-advocate, accessible environmental and focus group protocols. The success of the IDJ is the cross discipline/cross field fluid membership with a large core leadership team (5-members, 90% of whom are people with disabilities) who work together through temporary action teams that convene as needed to accomplish shared outcomes and develop next steps to make progress in decreasing violence and increasing equity in the state of Indiana for people with disabilities. During all-member meetings throughout the year, IDJ learns about the field or community represented by the IDJ member themselves, the connection to the problem of multiple forms of violence, and to develop solutions and tools to implement with people with disabilities for people with disabilities.

Organizations and individuals who participate in IDJ come away with an array of skills, competencies, and a shared language to prevent violence with and for people with disabilities in their workplaces and neighborhoods. The result is iterative and multiplying the number of accessible survivor-centered disability resources. IDJ is continuously developing and implementing creative, community-building evaluation strategies to assess our effectiveness as a coalition, and the effectiveness of IDJ prevention strategies, and sharing the story of IDJ’s collaborative work via the HUB. The Hub and IDJ leadership was featured by PreventConnect in a #MeToo Prevention Townhall, and National Resource Center on Domestic Violence accessed by people across the globe in 18 countries, 28 states, and more than 50 cities across two continents. The IDJ wants to understand what we are doing well, in survivor-centered and accessible ways, and how the IDJ might continue to improve and advance the work and the leadership of people with disabilities.

We were awarded funding by Indiana Department of Health to continue to support this project through paid leadership from the Rape Prevention and Education Grant FY2021-2022. The leadership includes Cierra Olivia Thomas-Williams (Indiana Coalition Against Domestic Violence), Skye Ashton Kantola (Consultant, Self-Advocate), Tammy Themel (AccessABILITY), Jody Powers (Consultant, Self-Advocate), Jennifer Milharcic (Consultant, Self-Advocate), and Haleigh Rigger (Indiana Coalition to End Sexual Assault and Human Trafficking). Together the leadership team works with the advisory council toward creating protective environments that enable thriving for people who are made vulnerable by systems inequity.

Post written by: Cierra Olivia Thomas Williams, IDJ Co-Founder, Co-Leader, Prevention Specialist at Indiana Coalition Against Domestic Violence  

Dismonsterize Disability

A one panel cartoon in black ink with a plain white background featuring a cerebral palsy man holding a picket sign that reads “DIS - MONSTERIZE DISABILITY " The man is looking straight forward standing on the sidewalk. At the right of the panel is written “DANIEL AARON HARRIS” in the far right bottom corner is written “ (C) 2021 Daniel Aaron Harris
A one panel cartoon in black ink with a plain white background featuring a cerebral palsy man holding a picket sign that reads “DIS – MONSTERIZE DISABILITY ” The man is looking straight forward standing on the sidewalk. At the right of the panel is written “DANIEL AARON HARRIS” in the far right bottom corner is written “ (C) 2021 Daniel Aaron Harris

Dis – Monsterize Disability 

Monsterize is defined as

To make something or another into a monster or the appearance of

Or 

To give another very bad reputation, demonize, vilify.

As a cerebral palsy man I have experienced monsterization along with a lot of people with disabilities. As an artist and children book author my mission is to change the narrative of people with disabilities are viewed and betrayed in media outlets. I chose “Dis instead of De” for a impactful a word play. Bobby Blue is a cerebral palsy character created by me to help people big and small see the value within the disability community.

Photo of Daniel Aaron: a white man siting in a chair in front of bookshelves. He has brown hair with a beard. He has a serious expression. He is wearing a yellow t-shirt that says "Fallen Walls". He has a tattoo of a lion on his left arm.
Photo of Daniel Aaron: a white man siting in a chair in front of bookselves. He has brown hair with a beard. He has a serious expression. He is wearing a yellow t-shirt that says “Fallen Walls”. He has a tattoo of a lion on his left arm.

Daniel Aaron Harris as an artist, actor and author aims to change the narrative of disability. He lives in Memphis TN, where he runs a ministry called Fallen Walls. Daniel has written 7 children’s books and is currently working on his doctorate of ministry at Western Theological Seminary.

Website- www.fallenwalls901.org
Facebook- Daniel Aaron Harris
Instagram and Twitter- danielfw901
YouTube – Daniel Aaron Harris