Gaps & Opportunities for Prevention Infrastructure

The Indiana Abuse Prevention Disability Task Force (IDJ) conducted interviews with disability serving and governmental agencies in order to understand the processes by which people with disabilities can report abuse including sexual assault (SA). There are three state divisions, Bureau of Developmental and Disability Services (BDDS), Division of Aging, and the Department of Child Services (DCS) that have processes in place for reporting, following up after incidents, and to provide for or “cover” medical and legal care. After the Task Force identified mandatory state reporting procedures, they created flow charts depicting these practices to encourage transparency across sectors.

During this collaborative effort, these three common gaps in holistic care emerged following the official reporting of the incident:

In reviewing the flow charts, IDJ learned disability service providers follow the reporting requirements set by state agencies and offer support where they can with little to no interagency collaboration. Each state division, BDDS, Division of Aging & DCS, collects incident data and enforces mandated safety standards and when sexual abuse incidents are substantiated, a criminal legal process may begin. The safety of the person receiving services is paramount as is protecting provider organizations from liability for harm that may come to the person while receiving services. Advocacy or support for a person with ID/DD through the criminal legal system and/or healing process is not guaranteed. Additionally, organizations that provide rape crisis services do not typically house people with ID/DD, especially when there are caregivers in the person’s life. 

The IDJ makes the following recommendations to increase safe, stable, and nurturing relationships and environments in the state of Indiana

Education of disability service providers, victim service providers, and the community is needed to ensure survivors with disabilities are connected to the healing services they need following an incident of violence. Education on bodily autonomy, sexual literacy, and inappropriate touch is needed for people with disabilities so they can communicate their desires and report positive or harmful experiences. 

Mandated processes ensure reports are made to the appropriate authorities to ensure safety of the survivor as well as other consumers. However, these processes can feel sterile, and confusing and sometimes made against the will of the victim or person harmed. 

Advocates remind survivors of their rights, empower survivors to choose what is right for them, and provide emotional support to survivors in challenging situations. For survivors with disabilities to benefit from advocacy, disability organizations must be informed of this role and contact them when needed, and victim service providers must be educated on the unique needs and ways to communicate with survivors with disabilities. 

The gaps discussed in this document demonstrate a lack of communication and understanding between the disability justice movement and the anti-violence movement, which we believe is the outcome of the siloing of social problems and constructing one size fits all solutions through state systems. While legal justice is attempted and pursued, prosecution and conviction rates remain low, and restorative and healing practices are ignored when they involve people with ID/DD. Instead, restorative justice is personal and responsive to the needs of the individual survivor or person harmed; it is both survivor-centered and person-first, empowering the individual who was harmed to drive the investigative and reparative processes. 

The IDJ is connecting people with and without disabilities across disciplines to identify and address the existing gaps in service provision, education, and communication across sectors and levels of prevention. We are joining the concepts of survivor-centered services from the anti-violence movement with person-first services from the disability justice movement so that survivors with disabilities are empowered to lead self-directed lives, which includes what happens following an incident of violence. 


Credit

Analysis and info-graphic was created by Haleigh Rigger and Micca Stewart.  Haleigh Rigger is the statewide Rape Crisis Coordinator with Indiana Coalition Against Sexual Assault and Human Trafficking (ICESAHT), haleigh@indianacesa.org and Micca Stewart, Bureau of Quality and Improvement Services (BQIS), Indiana Family & Social Services Administration (FSSA), micca.stewart@fssa.in.gov. Post written by  Cierra Olivia Thomas-Williams, Prevention Specialist, Indiana Coalition Against Domestic Violence (ICADV), cwilliams@icadvinc.org.

Voices from the Margins – People with Disabilities on Desire

Elevatus is more than a training facility for sexual health competency for people with developmental and intellectual disabilities; it is a wealth of resources. The Elevatus newsletter is always full of free sexual health resources and goodies and this week’s newsletter is no exception. Click on the button below to access “Listening to Self-Advocates Voices: How Shameful, Negative Messages, and Fear-Based Sexuality Education Puts People At Risk”


Please read the Elevatus article and if you can, track down the original article  Restrictions, Power, Companionship, and Intimacy: A Metasynthesis of People with Intellectual Disability Speaking About Sex and Relationships by Rhonda S. Black and Rebecca R. Kammes, (Intellect Dev Disabil. 2020 Feb;58(1):65-81), pass it on!


Credit

Post written by  Cierra Olivia Thomas-Williams, Prevention Specialist, Indiana Coalition Against Domestic Violence (ICADV), cwilliams@icadvinc.org.

Webinar 9: Sex and Sense Ability: Disability, Sexuality, and Available Adaptations

Description

When we challenge assumptions and acknowledge that people with disabilities can and often are people with sexual desires, we grant people with disability agency over their bodies and desires. Sex and pleasure are accessible to everyone with some creativity and an open mind. In this jam packed session we will hit on a multitude of topics related to sex and sexuality from practical adaptations, conversations with caregivers, navigating partnerships, body positivity and sex surrogacy. Sexual desire is a spectrum for us all, including people with disabilities. It’s time we talk about how we talk about sex, sexuality, desire and intimacy. From social media movements like #disabledpeoplearehot and #babewithmobilityaid to discussions with doctors and other service providers, the discussion is happening all around us. Join Em Mais and Skye Kantola as they share a queer inclusive perspective on navigating this complex topic. Everyone (over 18) and ready to engage openly is welcome and encouraged to attend! CC coming soon!

Webinar Outline
  • 5-10 minutes: Housekeeping & introductions
  • 20 minutes: Accessibility & Aids
  • 20 minutes: Communication & Sexuality
  • 10 minutes: Technology & Resources
  • 10 minutes: Q & A
Presenters
  • Em Mais (they/them), Disability Advocate, Researcher, and Undergraduate Student at Indiana University
  • Skye Ashton Kantola (she and they), Program Coordinator, Multicultural Efforts to End Sexual Assault, kantola@purdue.edu
  • Cierra Olivia Thomas-Williams (she/her, Tech Moderator), Prevention Specialist, Indiana Coalition Against Domestic Violence
  • Note: Lane Banister and Em Mais originally created this curriculum and Em and Skye made some modifications to the curriculum for today’s webinar.

Closed Captions & Transcript created by Skye Ashton Kantola, MESA Program Coordinator

Co-Sponsors

Abused and Betrayed by NPR

NPR provides 8 in-depth stories about sexual violence and people with intellectual and developmental disabilities, including interviews with people who have been harmed by sexual violence and their family. This series is available as a podcast as well as transcripts.


Credit

 Post by Cierra Olivia Thomas Williams, Prevention Specialist at Indiana Coalition Against Domestic Violence