Vulnerability in Sexual Violence Primary Prevention

Originally published by ICADV on October 22, 2020

At some point in the last five years the phrase “vulnerable populations,” used heavily in grant announcements and research articles, has leaked into my writing and my speech, especially in professional settings. For years I introduced myself as a Preventionist who works with vulnerable people or populations to engage in sexual violence primary prevention (SVPP). Last fall I attended a presentation that left me feeling challenged by how I understood vulnerability and the way I have used it to construct a frame for the work to end sexual violence (SV) against people with disabilities.

The fact is all humans are vulnerable and all humans are exposed to varying degrees of risk for different kinds of harm throughout their lives. Vulnerable is an adjective that means easily hurt, wounded, or attacked (from the Latin verb “to wound”). In a culture that glorifies, normalizes, and capitalizes on violence it makes sense to have such language to describe people. When vulnerability becomes shorthand for the problem of historic and continuous inequity within and across systems, bias can thrive, and the connection to the problem—systems inequity for people with cognitive disabilities—is lost. Vulnerability then becomes a tool of silence integrating to the cultural scaffolding of sexual violence as an option with few consequences for people who harm.

People with cognitive and developmental disabilities experience disproportionate rates of sexual violence, but they are not inherently more vulnerable to violence victimization or perpetration than people without disabilitiesInstead of seeing an individual as “vulnerable” we should look towards the disproportions or inequalities in our society that make some people more vulnerable to sexual violence and address the willingness of people who cause harm to exploit those inequities to abuse people with disabilities.

People with cognitive or developmental disabilities have less access to opportunities and resources across the lifespan and it is these differences that are disabling to individuals and their families. It is not the person’s identity that makes them vulnerable. The scale of exclusion from protective systems of support—like having one’s basic needs met and connectedness through a variety of human experiences across the lifespan—makes a person vulnerable to increased risk of experiencing violence or causing harm. This makes critical the need for sexual violence prevention strategies that create protective environments

When our prevention strategies address community or neighborhood specific risk factors, like poverty, no internet access, or inaccessible and unavailable public transportation, we create opportunities for safety, stability, and nurturance among people. This connectedness-architecture is population level infrastructure that reduces toxic stress—a precursor to violence perpetration—broadly benefitting everyone in the community. It is from within this web of social connectedness experiences that humans can and do take risks in relationships and build resilience. Resilience is a survivor’s callous, it does not prevent sexual violence or vulnerability, but social connectedness does.

Our organizations can lead with policies and practices that support human connectedness among staff, such as paid family leave, and tele-commuting post-pandemic. In day-to-day operations, addressing inequity within our prevention practices could include budgeting time, space, and dollars to create accessibility in events, on websites, and in programs; organizations can also create accessible in-person and online meeting environments. Prioritizing accessibility creates an invitation for people with disabilities to be part of and learn about the work of prevention. However, accessibility is a legal baseline and not the same as inclusion.

Building connectedness across difference requires time, trust, genuine understanding, and intentional relationship building with people with disabilities. It is harder for me as a professional primary preventionist of violence to replicate structurally supported inequitable conditions in my work if I am accountable to people with disabilities. My professional inclusion practice is in the elevating of the voices of people with disabilities in the work to end sexual violence. Because the Rape Prevention and Education grant allows consultants to be paid an equitable rate, people with disabilities are paid for their feedback and contibutions to end sexual violence. I have colleagues with disabilities who are willing to help me learn when I am using able bias and ableism in my prevention strategies and leadership practices. Recognizing and acting against bias and discriminately wielding equity is critical to ending sexual violence in Indiana.

The problem of sexual violence is not with individuals, but with how individuals and systems use power-over to maintain the status quo. I am a gatekeeper of sexual violence prevention work in Indiana and I can cause harm through my professional practices. I am a Prevention Specialist who works with leaders and decision makers in our state to address the lack of access to opportunities and resources for people with disabilities who are continually segregated, isolated, and marginalized from essential systems like transportation, employment, and education, and from critical violence prevention strategies and crisis intervention services. By addressing equity in internal organizational practices and in external partnerships, preventionists can work to change the systems that marginalize and devalue people and construct vulnerability. We can’t shorthand anti-oppression work—there is nothing short or easy about it.

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Request for Submissions

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Credit

Publication Guidelines written by Skye Ashton Kantola, Assistant Director at Multicultural Efforts to End Sexual Assault, kantola@purdue.edu.

Webinar 12: Sexual Wellness for People with Cognitive and Developmental Disabilities as Sexual Violence Primary Prevention

Description

Contextualizing sexual wellness for people with disabilities as a strategy for SVPP across the social ecological model; Risk Factors for SV for People with Disabilities related to sexual wellness; What kinds of things does a sexual wellness instructor need to consider for program adaptation? How should we address consent?

Webinar Outline
  • 5 minutes: Housekeeping & introductions (Skye/Cierra)
  • 15 minutes: Sexual Violence Primary Prevention and Disability Justice (Skye/Cierra)
  • 40-60 minutes: Panel Conversation (Panelists)
  • 10 minutes: Attendee Questions (Skye/Cierra)
  • 5-10 minutes: Resource Recommendations (Crew)
Presenters
  • Skye Kantola (she and they, Facilitator): Program Coordinator, Multicultural Efforts to End Sexual Assault, kantola@purdu.edu
  • Cierra Olivia Thomas-Williams (she/her, Presenter): Prevention Specialist, Indiana Coalition Against Domestic Violence, cwilliams@icadvinc.org
  • Jordan Haisley (she/her, Panelist), Disability Consultant, Indiana Coalition Against Domestic Violence
  • Dr. Mary Ciccarelli (she/her, Panelist), Professor of Clinical Medicine and Clinical Pediatrics at Indiana University School of Medicine
  • Pam Malin (she/her, Panelist), Disability Victim Advocate (she/her, Panelist), Disability Rights Wisconsin
  • Cindy Bentley, Executive Director (she/her, Panelist), People First Wisconsin
  • Timotheus Gordon (he/him, Panelist), Research Assistant, University of Illinois – Chicago

Closed Captions & Transcript created by Skye Ashton Kantola, MESA Program Coordinator

Co-Sponsors

Risk Factors for Sexual Violence Among People with Cognitive and Developmental Disabilities

The Abuse Prevention Disability Task Force completed a literature review in 2018-2019 to identify risk factors associated with sexual violence and people with cognitive and developmental disabilities. Sexual violence (SV) primary prevention requires increasing protective factors and reducing/eliminating sexual violence perpetration risk factors; and though the Centers for Disease Control and Prevention have identified risk and protective factors for sexual violence perpetration, the research may not include people with cognitive and developmental disabilities. People with cognitive and developmental disabilities communicate using a variety of methods and some people do not use written or spoken “standardized” language. The result is hundreds of thousands of people are left out of scientifically designed SV data collection practices, such as NISVS and YRBSS. The task force literature review included science-based evidence (journal articles), practice-based evidence (toolkits), and practice wisdom (community resources) created after the year 2000.

These free and readily available resources reviewed (see citations below) generally associated risk factors with victimization and with disability increasing one’s risk for sexual violence victimization (as a result of structural inequities that place people with disabilities at greater risk). There were no clear findings to report beyond the CDC about risk and protective factors for perpetration. The task force organized the sexual violence risks for victimization across the social ecological model according to the level of their impact on people with disabilities, including cognitive and developmental disabilities. We are developing recommendations to pass along to those who are interested, so keep checking back.


References:

  • Alriksson-Schmidt, A. I., Armour, B. S., & Thibadeau, J. K. (2010). Are Adolescent Girls With a Physical Disability at Increased Risk for Sexual Violence? Journal of School Health, 80, 361–367. doi:10.1111/j.1746-1561.2010.00514
  • Basile, K. C., Breiding, M. J., & Smith, S. G. (2016). Disability and Risk of Recent Sexual Violence in the United States. American Journal of Public Health, 106(5), 928–933. doi:10.2105/AJPH.2015.303004
  • Cowley, Kelsey, Fellow, Self-Advocacy Resource and Technical Assistance Center. (2018). Starting the Conversation: A Toolkit for Self-Advocates to Talk About Sexual Violence in Their Community. Toolkit available online February 13, 2020 at: https://selfadvocacyinfo.org/resource/starting-the-conversation-a-toolkit-for-self-advocates-to-talk-about-sexual-violence-in-their-community/
  • Davis, Leigh Ann, M.S.S.S.W., M.P.A., L.A.D. (2019). Resources, People with Intellectual Disability and Sexual Violence. The Arc. Retrieved online at May 20, 2019: https://www.thearc.org/sslpage.aspx?pid=2457
  • Euser, S. , Alink, L. R., Tharner, A. , IJzendoorn, M. H. and Bakermans‐Kranenburg, M. J. (2016). The Prevalence of Child Sexual Abuse in Out‐of‐home Care: Increased Risk for Children with a Mild Intellectual Disability. Journal of Applied Research in Intellectual Disabilities, 29: 83-92. doi:10.1111/jar.12160
  • Fredriksen-Goldsen, Karen I., Hyun-Jun Kim, and Susan E. Barkan (2012). Disability Among Lesbian, Gay, and Bisexual Adults: Disparities in Prevalence and Risk. American Journal of Public Health 102, e16_e21. doi.org/10.2105/AJPH.2011.300379
  • Hughes K, Bellis MA, Jones L, Wood S, Bates G, Eckley L, McCoy E, Mikton C, Shakespeare T, Officer A. (2012). Prevalence and risk of violence against adults with disabilities: a systematic review and meta-analysis of observational studies. Lancet; doi:10.1016/S0410-6736(11)61851-5.
  • Keilty, J & Connelly, G. (2001). Making a statement: An exploratory study of barriers facing women with an intellectual disability when making a statement about sexual assault to police. Disability & Society, 16 (2), 273-291.
  • Krahn, Gloria L. PhD, MPH, Deborah Klein Walker, EdD, and Rosaly Correa-De-Araujo, MD, PhD (2015). Persons with Disabilities as an Unrecognized Health Disparity Population. American Journal of Public Health, Supplement 2, 2015, Vol. 105, No. S2., p. S198. Retrieved November 1, 2018 from: https://ajph.aphapublications.org/doi/pdf/10.2105/AJPH.2014.302182
  • National Center for Injury Prevention and Control, Division of Violence Prevention (2020). Risk and Protective Factors. Accessed online May 20, 2019 at https://www.cdc.gov/violenceprevention/sexualviolence/riskprotectivefactors.html
  • Normand, C.L. and Sallafranque‐St‐Louis, F. (2016), Cybervictimization of Young People With an Intellectual or Developmental Disability: Risks Specific to Sexual Solicitation. Journal ofApplied Research in Intellectual Disabilities, 29:99-110. doi:10.1111/jar.12163
  • Plummer, S.-B., & Findley, P. (2012). Women With Disabilities’ Experience With Physical and Sexual Abuse: Review of the Literature and Implications for the Field. Trauma Violence Abuse 2012 13: 15. Accessed online May 21, 2019 at:
  • https://www.researchgate.net/profile/Patricia_Findley/publication/51787909_Women_With_Disabilities’_Experience_With_Physical_and_Sexual_Abuse/links/0deec5304c5a1c79d8000000.pdf
  • Taggart, L. & R. McMillan (2009). Listening to women with intellectual disabilities and mental health problems: a focus on risk and resilient factors. Journal of Intellectual Disabilities, 2009, vol 13(4) 321‒340. doi: 10.1177⁄1744629509353239
  • West Virginia Foundation for Rape Information and Services (2019). West Virginia S.A.F.E. Training and Collaboration Toolkit, Serving Sexual Violence Victims with Disabilities, B1.1 Sexual Violence 101. Sexual Victimization of Persons with Disabilities: Prevalence and Risk Factors Sexual Victimization of Persons with Disabilities: Prevalence and Risk Factors. West Virginia Foundation for Rape Information and Services. Accessed online May 20, 2019 at:
  • https://www.arcnj.org/file_download/eeead953-679c-4937-9f6e-596248f9261e

Credit

Research conducted and post written by  Cierra Olivia Thomas-Williams, Prevention Specialist, Indiana Coalition Against Domestic Violence (ICADV), cwilliams@icadvinc.org. Infographics created by Kat Chappell, Outreach and Operations Manager, Indiana Governor’s Council for People with Disabilities, kchappell@gcpd.in.gov. Post edited by Skye Ashton Kantola (she/they), Assistant Director at Multicultural Efforts to End Sexual Assault, kantola@purdue.edu.