Using Data in Unconventional Ways: What ICADV Is Learning from Disabled Hoosiers Through Art

Expanding How We Understand Domestic and Sexual Violence
At ICADV, we are continually exploring new and meaningful ways to understand the experiences of survivors across Indiana. One area where traditional data collection consistently falls short is in capturing the realities of Disabled people and people with disabilities who experience domestic and sexual violence.

Many existing data sources do not collect disability status at all or rely solely on the six standard disability questions used in federal surveys. Even when disability is measured, reporting systems and data collection tools are frequently inaccessible. Physical, cognitive, and other barriers can prevent people with disabilities from safely reporting harm or participating in research. As a result, disabled survivors are often underrepresented—or entirely missing—from the data that informs policies, programs, and prevention strategies.

With more than one in four Hoosiers identifying as disabled, these data gaps have serious consequences. When disabled people are left out, our understanding of violence is incomplete, and our prevention efforts fail to reach those who may be at greatest risk.

Moving Beyond Counting Harm
Collecting, analyzing, and publishing data about violence against disabled people is essential. However, data must do more than count incidents after harm occurs. We must also understand what keeps people safe, what promotes healing, and what helps disabled people thrive within their communities.

This includes examining how we create protective, affirming, and accessible environments that support autonomy, dignity, and resilience. To do this effectively, we need data collection methods that are as inclusive, flexible, and creative as the communities we aim to serve.

Art as Data: Centering Disabled Voices
With support from the Noyes Foundation, the Hub exhibits expressive arts projects that invites disabled people to share their experiences, identities, barriers, and sources of strength through creative expression. This approach allowed participants to communicate on their own terms, using methods that felt safer and more accessible than traditional surveys or reporting tools.

The artwork produced through this project is not only beautiful, it is data. It is storytelling. It is lived experience. It offers insights that traditional research methods are rarely designed to capture. By treating art as valid and meaningful data, we are able to learn directly from disabled people in ways that honor their expertise in their own lives.

As we reviewed the artwork and accompanying reflections, clear themes emerged that deepen our understanding of both risk factors and protective factors related to domestic and sexual violence within disabled communities.

Protective Factors That Support Well‑Being
Many participants emphasized the importance of supportive relationships and environments. Words such as love, joy, calm, family, encouragement, acceptance, and stable housing appeared repeatedly throughout the artwork. These concepts highlight how affirming relationships, safe housing, and access to people who can help connect individuals to resources play a critical role in safety and healing.

Stable housing was consistently identified as foundational to well‑being. A safe place to live is not just a basic need, it is a key factor in reducing vulnerability to violence.
Identity and empowerment also emerged as strong protective themes. Participants reflected on disability identity, queer identity, visibility, and dignity as sources of strength. They shared that being able to define oneself and be recognized as a full, autonomous person is closely linked to self‑worth, confidence, and meaningful connection.

Creativity itself played a protective role. Engagement with special interests, passion projects, and artistic expression supported mental health, joy, and agency. Creative work offered participants a way to process experiences, express identity, and cultivate a sense of purpose.

Risk Factors That Increase Vulnerability
Alongside protective elements, participants also shared experiences associated with increased risk and harm. This included references to mental health challenges such as depression, anxiety, chronic stress, sadness, and suicidal ideation. These themes underscore the need for mental health supports that are affordable, accessible, and affirming for disabled people.

Trauma, abuse, and oppression were recurring themes throughout the artwork. Participants named experiences of violence, discrimination, stereotyping, internalized ableism, and isolation. These harms are not individual failures; they are the result of systemic inequities and social exclusion.

Barriers to autonomy were also commonly described. Participants shared experiences of having decision‑making power taken away, being treated as a burden, or feeling constrained by systems that limit independence. These conditions can increase vulnerability to abuse and negatively impact mental health.

Social isolation appeared repeatedly as both a risk factor for violence and a consequence of ableism—particularly when disabled people are excluded from community spaces and relationships.

Participants also pointed to unmet needs, including exhaustion, emotional distress, and concerns about safety. These reflections signal gaps in support systems and highlight areas where intervention is urgently needed.

What This Means for Prevention and Public Health
Together, these insights point to several critical considerations for public health and violence prevention efforts. Participants’ reflections reinforce the importance of intersectionality, particularly for people who are disabled, queer, neurodivergent, or navigating multiple marginalized identities. Prevention strategies must recognize these overlapping experiences and address compounded forms of stigma.

The data also highlights the value of safe and nurturing environments, including stable housing, supportive relationships, and spaces that encourage creativity and independence. Supporting autonomy and decision‑making is essential for promoting safety and well‑being.

Finally, the prevalence of trauma and mental health concerns reinforces the need for accessible, trauma‑informed, and disability‑affirming services across systems.

Expanding What Counts as Data
This project demonstrates that disabled Hoosiers are fully capable of sharing their experiences. The challenge has never been communication—it has been whether our systems are prepared to listen.

When we expand our definition of data to include art, creativity, and expressive storytelling, we gain deeper and more accurate insights. We center people who have historically been excluded, strengthen our understanding of both risk and protection, and inform prevention strategies grounded in real lived experiences.

As you explore the art on the IDJ Resource Hub, we invite you to appreciate the talent on display, reflect on the messages the artwork conveys, and commit to being inclusive and creative when collecting valuable information from communities with distinct needs and powerful solutions.

ICADV will continue to use innovative and inclusive data methods to build safer, more ccessible, and more responsive systems for all survivors.

This content was written by Timike Jones at tjones@icadvinc.org.

To learn more about how we evaluate or do violence prevention, please email barizmendi@icadvinc.org.

Help us bring your voice to the forefront!

Request for Submissions

The Indiana Disability Justice Task Force ( or “IDJ”) is looking for contributors for the online Disability Justice and Violence Prevention Resource Hub!  We can compensate you for your participation. If you are selected to be published, you will receive $250!  (Please be aware this could affect benefits and services for those who have them. Please seek out guidance.)

The IDJ Task Force is always looking for:

Along with your submission as outlined below, please also include:

  • The name you’d like associated with the publication.
  • Any organization or agency affiliation that you’d like included with the publication.
  • A brief bio that can be included with the publication.
  • A photo with an image description that can be included with the publication (if submission is in written, not video format).  If you’d like to learn about image descriptions and how to write them, please Read This.
  • Additional information about where people can find you and support your work, such as social media handles, website, etc.

Please submit questions and publications to barizmendi@icadvinc.org. Submissions will be accepted year-round on a rolling basis.  Please note that Online Hub coordinators are mostly volunteer-based, so please be patient as you wait for a response.  Once submitted, a Task Force member will confirm receipt.  Shortly after, you will receive edits or a confirmation that the submission is ready for publication along with an expected publication date.  Please be sure to confirm you are prepared for publication.  Once published, please share widely!


Credit

Publication Guidelines written by Skye Ashton Kantola, Assistant Director at Multicultural Efforts to End Sexual Assault, kantola@purdue.edu.

Risk Factors for Sexual Violence Among People with Cognitive and Developmental Disabilities

The Abuse Prevention Disability Task Force completed a literature review in 2018-2019 to identify risk factors associated with sexual violence and people with cognitive and developmental disabilities. Sexual violence (SV) primary prevention requires increasing protective factors and reducing/eliminating sexual violence perpetration risk factors; and though the Centers for Disease Control and Prevention have identified risk and protective factors for sexual violence perpetration, the research may not include people with cognitive and developmental disabilities. People with cognitive and developmental disabilities communicate using a variety of methods and some people do not use written or spoken “standardized” language. The result is hundreds of thousands of people are left out of scientifically designed SV data collection practices, such as NISVS and YRBSS. The task force literature review included science-based evidence (journal articles), practice-based evidence (toolkits), and practice wisdom (community resources) created after the year 2000.

These free and readily available resources reviewed (see citations below) generally associated risk factors with victimization and with disability increasing one’s risk for sexual violence victimization (as a result of structural inequities that place people with disabilities at greater risk). There were no clear findings to report beyond the CDC about risk and protective factors for perpetration. The task force organized the sexual violence risks for victimization across the social ecological model according to the level of their impact on people with disabilities, including cognitive and developmental disabilities. We are developing recommendations to pass along to those who are interested, so keep checking back.


References:

  • Alriksson-Schmidt, A. I., Armour, B. S., & Thibadeau, J. K. (2010). Are Adolescent Girls With a Physical Disability at Increased Risk for Sexual Violence? Journal of School Health, 80, 361–367. doi:10.1111/j.1746-1561.2010.00514
  • Basile, K. C., Breiding, M. J., & Smith, S. G. (2016). Disability and Risk of Recent Sexual Violence in the United States. American Journal of Public Health, 106(5), 928–933. doi:10.2105/AJPH.2015.303004
  • Cowley, Kelsey, Fellow, Self-Advocacy Resource and Technical Assistance Center. (2018). Starting the Conversation: A Toolkit for Self-Advocates to Talk About Sexual Violence in Their Community. Toolkit available online February 13, 2020 at: https://selfadvocacyinfo.org/resource/starting-the-conversation-a-toolkit-for-self-advocates-to-talk-about-sexual-violence-in-their-community/
  • Davis, Leigh Ann, M.S.S.S.W., M.P.A., L.A.D. (2019). Resources, People with Intellectual Disability and Sexual Violence. The Arc. Retrieved online at May 20, 2019: https://www.thearc.org/sslpage.aspx?pid=2457
  • Euser, S. , Alink, L. R., Tharner, A. , IJzendoorn, M. H. and Bakermans‐Kranenburg, M. J. (2016). The Prevalence of Child Sexual Abuse in Out‐of‐home Care: Increased Risk for Children with a Mild Intellectual Disability. Journal of Applied Research in Intellectual Disabilities, 29: 83-92. doi:10.1111/jar.12160
  • Fredriksen-Goldsen, Karen I., Hyun-Jun Kim, and Susan E. Barkan (2012). Disability Among Lesbian, Gay, and Bisexual Adults: Disparities in Prevalence and Risk. American Journal of Public Health 102, e16_e21. doi.org/10.2105/AJPH.2011.300379
  • Hughes K, Bellis MA, Jones L, Wood S, Bates G, Eckley L, McCoy E, Mikton C, Shakespeare T, Officer A. (2012). Prevalence and risk of violence against adults with disabilities: a systematic review and meta-analysis of observational studies. Lancet; doi:10.1016/S0410-6736(11)61851-5.
  • Keilty, J & Connelly, G. (2001). Making a statement: An exploratory study of barriers facing women with an intellectual disability when making a statement about sexual assault to police. Disability & Society, 16 (2), 273-291.
  • Krahn, Gloria L. PhD, MPH, Deborah Klein Walker, EdD, and Rosaly Correa-De-Araujo, MD, PhD (2015). Persons with Disabilities as an Unrecognized Health Disparity Population. American Journal of Public Health, Supplement 2, 2015, Vol. 105, No. S2., p. S198. Retrieved November 1, 2018 from: https://ajph.aphapublications.org/doi/pdf/10.2105/AJPH.2014.302182
  • National Center for Injury Prevention and Control, Division of Violence Prevention (2020). Risk and Protective Factors. Accessed online May 20, 2019 at https://www.cdc.gov/violenceprevention/sexualviolence/riskprotectivefactors.html
  • Normand, C.L. and Sallafranque‐St‐Louis, F. (2016), Cybervictimization of Young People With an Intellectual or Developmental Disability: Risks Specific to Sexual Solicitation. Journal ofApplied Research in Intellectual Disabilities, 29:99-110. doi:10.1111/jar.12163
  • Plummer, S.-B., & Findley, P. (2012). Women With Disabilities’ Experience With Physical and Sexual Abuse: Review of the Literature and Implications for the Field. Trauma Violence Abuse 2012 13: 15. Accessed online May 21, 2019 at:
  • https://www.researchgate.net/profile/Patricia_Findley/publication/51787909_Women_With_Disabilities’_Experience_With_Physical_and_Sexual_Abuse/links/0deec5304c5a1c79d8000000.pdf
  • Taggart, L. & R. McMillan (2009). Listening to women with intellectual disabilities and mental health problems: a focus on risk and resilient factors. Journal of Intellectual Disabilities, 2009, vol 13(4) 321‒340. doi: 10.1177⁄1744629509353239
  • West Virginia Foundation for Rape Information and Services (2019). West Virginia S.A.F.E. Training and Collaboration Toolkit, Serving Sexual Violence Victims with Disabilities, B1.1 Sexual Violence 101. Sexual Victimization of Persons with Disabilities: Prevalence and Risk Factors Sexual Victimization of Persons with Disabilities: Prevalence and Risk Factors. West Virginia Foundation for Rape Information and Services. Accessed online May 20, 2019 at:
  • https://www.arcnj.org/file_download/eeead953-679c-4937-9f6e-596248f9261e

Credit

Research conducted and post written by  Cierra Olivia Thomas-Williams, Prevention Specialist, Indiana Coalition Against Domestic Violence (ICADV), cwilliams@icadvinc.org. Infographics created by Kat Chappell, Outreach and Operations Manager, Indiana Governor’s Council for People with Disabilities, kchappell@gcpd.in.gov. Post edited by Skye Ashton Kantola (she/they), Assistant Director at Multicultural Efforts to End Sexual Assault, kantola@purdue.edu.

Emails may have changed. Please contact Cierra Olivia Thomas Williams at Nothing Without Us Collective for the latest contact information.

Voices from the Margins – People with Disabilities on Desire

Elevatus is more than a training facility for sexual health competency for people with developmental and intellectual disabilities; it is a wealth of resources. The Elevatus newsletter is always full of free sexual health resources and goodies and this week’s newsletter is no exception. Click on the button below to access “Listening to Self-Advocates Voices: How Shameful, Negative Messages, and Fear-Based Sexuality Education Puts People At Risk”


Please read the Elevatus article and if you can, track down the original article  Restrictions, Power, Companionship, and Intimacy: A Metasynthesis of People with Intellectual Disability Speaking About Sex and Relationships by Rhonda S. Black and Rebecca R. Kammes, (Intellect Dev Disabil. 2020 Feb;58(1):65-81), pass it on!


Credit

Post written by  Cierra Olivia Thomas-Williams, Prevention Specialist, Indiana Coalition Against Domestic Violence (ICADV), cwilliams@icadvinc.org.