Strength of the Body, Knowledge of the Mind, and Honesty of the Heart: Adaptive Karate for People with Disabilities

By Jeremy Warriner

When I was in fifth grade my parents enrolled me in a Karate school so that I could learn how to defend myself. I was a small kid with a quick temper who kept getting into fights he couldn’t finish. For seven years of my youth, I spent most afternoons reciting a creed to rely on strength of the body, knowledge of the mind, and honesty of the heart to “win the battle within myself” and defend others, then developed physical and mental skills that built on those concepts. I achieved the rank of first-degree black-belt before I turned sixteen.

While I did learn to defend myself, what I really learned was how not to get into fights.  My life transitioned from youth into adulthood as I moved away from home for education and career.  A decade later, my karate belts were nice memorabilia of my youth to decorate my walls.  It was always something I thought I would get back to when I found the time. 

During my commute home from work, almost eighteen years ago, I was trapped in a burning Wrangler after a car accident.  Six weeks later I awoke to learn that both of my legs had been amputated above each knee.

I remember laying in the burn unit, thinking about my youth and the effort I had put in to learning Shorei-Goju Ryu.  Something valuable that I had let slip away as my career took prominence in my life but had always intended to practice again.  This was now gone…taken with my legs, and the effort to learn Karate in my youth now felt wasted.

As I learned to walk on prostheses, my Physical Therapist was impressed by my balance and body awareness.  She attributed this to my martial arts background.  It was a bittersweet benefit left over from my training in my youth, but it relieved a little of the loss. 

Adapting to life as a Person with Disabilities is hard…it’s the hardest thing that I have ever had to do.  Beyond the physical actions of fighting, a lot of what I learned from Karate was about self-discipline, motivation, determination, and resiliency which helped me adjust to living life using a wheelchair and prosthetics with crutches.  I was using what I had learned to reach a black-belt rank in Shorei-Goju Ryu, every day now, to deal with the emotional and physical trauma of life with a disability. 

These skills, learned in my youth, helped me to access the supports needed to define and achieve an independent lifestyle as a Person with a Disability.  The time spent working with a Sensei (Teacher) and other students had taught me to be open to peer support.  The self-discipline, determination, and confidence developed to earn my black-belt now supported the ability to advocate for myself and others; in efforts to speak up for my own rights, and to raise Disability Inclusion and Equity through increased Accessibility at a social level, which leads to a Diverse sense of Belonging.  Resiliency fed a belief that I could live an independent lifestyle and led me to define what that meant and how that would look, and to ask for the help needed to make modifications and access the resources (from disability support organizations to crowdfunding) for the assistive technology, training, and adaptations to support my vision of independence.         

 

Many aspects of the Martial Arts have benefits for People with Disabilities.  Reframing your disabilities as part of your healthy state, not something working against it, Karate provides accessible and adaptable exercise that helps develop confidence, endurance, and self-awareness.  Most importantly, by practicing and adapting Shorei-Goju Ryu, I have redefined my perceptions of a healthy body, mind, and spirit in a way that is inclusive of my disabilities, and I have an adaptive avenue to further develop those aspects of life. 

Karate can be adapted for any person with any disability, customized to meet their goals, and modified as the individual’s skills progress.  Learning Martial Arts can help you face life with adaptability and resiliency, both of which are vital aspects of the disability experience. During the COVID lockdowns, I virtually assisted a young woman with Down Syndrome doing her senior project on Martial Arts.  I demonstrated strikes (punches & blocks) from a wheelchair in Indiana, and she demonstrated kicks, stances, and movement from a classroom in Georgia.  I couldn’t remember any of the Katas (choreographed forms for practice and meditation), but I could help her put the basics together.  When we finished, I found myself asking the question “how do I really modify this for my 47-year-old bi-lateral above knee amputee body?”

Demonstrations can be seen on the Adaptive Karate page at https://www.walkingspirit.org.

 

                      

The first picture shows Jeremy Warriner a white man in his mid-forties with reddish-brown hair and a trimmed mustache and goatee, in a grassy yard under the shade of trees on a sunny day with a cloudy blue sky. He is centered in the picture standing on his left prosthetic leg, with two forearm crutches planted on the ground in front of him at opposite angles, he is leaning forward and to his left side as he kicks to the right side with his right prosthetic leg. The second picture Jeremy Warriner sitting in his purple rigid frame wheelchair without his prosthetic legs, on a wooden deck outside of a blue house with green trim, white windows & French doors on his right. Jeremy is wearing a black gi (karate uniform)

(Image Descriptions: The image on the left shows Jeremy Warriner a white man in his mid-forties with reddish-brown hair and a trimmed mustache and goatee, in a grassy yard under the shade of trees on a sunny day with a cloudy blue sky. He is centered in the picture standing on his left prosthetic leg, with two forearm crutches planted on the ground in front of him at opposite angles, he is leaning forward and to his left side as he kicks to the right side with his right prosthetic leg. He is wearing a white gi top (karate tunic), a long fabric black belt knotted at the waist, and black shorts. His prosthetic knees and legs are a shiny silver aluminum color with ball shaped “ankles” above hiking boots on his prosthetic feet. There is a rope hammock to his left and tall trees in front of a blue house with white windows & doors in the background.

The image on the right shows Jeremy Warriner sitting in his purple rigid frame wheelchair without his prosthetic legs, on a wooden deck outside of a blue house with green trim, white windows & French doors on his right. Jeremy is wearing a black gi (karate uniform) with a long fabric black belt knotted at his waist. The two ends of the belt dangle between his thighs and there is a red stripe near the right tip of the belt indicating the first black-belt rank. He is facing forward and centered in the bottom half of the picture, with his left hand resting on the armrest above the left wheel, knuckles against his left flank, elbow bent out to his left side. His right arm is relaxed with his right hand resting on the distal end of his residual right leg. The empty lower legs of his black pants are folded underneath him, exposing the empty footrest, Velcro straps, a pocket, a small circular container, and a cupholder attached to his seat and frame. There is a tablet with a red keyboard and a legal note pad with pen on a small glass table to his left, with a power strip on the deck in front of the table. Behind him, a ramp with a railing extends down to a stone path with grass and trees in the background. Jeremy is smiling at the camera, his long reddish-brown hair falls loose behind his shoulders, and his mustache and goatee are trimmed short. Sunlight filters through the leaves of a tree above him, casting a light shade on the deck).

 

ABOUT THE AUTHOR: Jeremy Warriner

Whether walking on next-generation prosthetic legs or utilizing a wheelchair, Jeremy is an active member of his community, founder of Walking Spirit & Spirit Therapies, LLC, charter member of the international Rotary Club for World Disability Advocates, and a devoted husband & stepfather. His passion is enhancing our communities through providing assessments, consulting, training and support on Accessible Diversity, Equity, Inclusion, and Belonging from a Disability Lens. Jeremy’s current projects include adapting Karate to his disability, co-hosting the international podcast “World Disability Matters”, facilitating the virtual Disabilities & Conditions of Aging Network in central Indiana, and writing a book about his experiences adapting to life as a bilateral above knee amputee and burn survivor. He can be reached through his website at https://www.walkingspirit.org or by email at jeremy@walkingspirit.org.

The Importance of Home Healthcare with Jody, Danielle, and Diane

The Importance of Home Healthcare with Jody, Danielle, and Diane 

Interview on January 17, 2023 

This video is an interview about how three people with disabilities navigate the home healthcare system. The guests are Danielle Pitmon, Diane Pitmon, and Jody Michele. Jody Michele is the interviewer, and the translator and moderator is Cierra Olivia Thomas Williams.  

The questions that are discussed are:  

  • Tell me a little bit about yourself and what disabilities you have.  
  • Why is home healthcare important? 
  • What are some of the major issues that you have had over the years with your aids? 
  • How can the system be improved? 

Video Transcript 

Jody  

Hi. My name is Jody Michelle 

And Indiana.  

And today Indiana disability justice will be talking about an important topic.  

We will be talking about home health care. 

Home health care is when people come in to take care of the needs of people with disabilities. 

So let’s get going 

Cierra Olivia Thomas Williams will be the moderator. 

Cierra, take it away.  

Cierra 

Okay, Panel. I’m so excited to hear from you. 

So why don’t we start with you, Jody? 

Tell me a little bit about yourself, and what disabilities you have. 

Jody 

Well, I’m the communication coordinator of idj 

And I’m also the hub coordinator of idj. 

And I have cerebral palsy and depression and PTSD.  

Cierra 

Thank you, Jody. Danielle, tell us a little bit about yourself, and what disabilities you have 

Danielle 

My disabilities I have is legally blind, borderline personality disorder. 

Bipolar 2, PTSD, generalized anxiety disorder, major depressive disorder, and I also am undiagnosed as having autism. 

And I think that’s it. 

Cierra 

Yeah. Tell us a little bit about you. 

What are you into? 

Danielle 

Oh, about me! I am an advocate of people with disabilities, and I run my own advocacy program personally, along with my wife. And we speak on the accessibility for those with disabilities and for the ability to have the right assistance even in domestic violence. And also speaking on behalf of other clients, if necessary, to help them. And that’s pretty much about it. 

Cierra 

Thanks Danielle. Diane, why don’t you tell us about yourself and the disabilities that you have? 

Diane 

Well, one disability I have is severe arthritis. And it’s called Arthritis Mitosis. It’s in the muscles and the joints. 

And I am in 24/7 all year-round pain. And it’s nonstop. And I have PTSD And anxiety 

Danielle  

Depression too 

Diane 

Depression too. 

I’m not getting out as much as I would like to 

But it’s hard on me. 

Cierra 

Do you want to share anything else about yourself? 

Diane 

I am an advocate for people with disabilities, and I help them figure out which building to go to or not go to, because some buildings are not so they don’t have ramps or electric doors. 

You have to rely on somebody to help you at the door. 

And some people don’t care. They do that, but some places they don’t even have ramps to go into. I advocate and help them figure out which building the go to, and  

Danielle  

what buildings are accessible. 

Cierra  

That’s nice. 

Diane  

Right  

Cierra 

Thank you. Thank you for that work. Okay, let’s dig into this topic. Jody, why is home health care so important? 

Jody 

Home health care is so important, because it allows me to live the life I want. Without home health care, I would have to live in a nursing home. And that would mean a very different life. 

Because of home health care, I am able to live in my own home. And I am able to be self-employed. And I am able to be active in the community. I am able to be a part of my church family as a minister. 

So that is why home health care is so important. It allows me to live the life that I want. I need people to help me out of bed and shower and get dressed. 

Yes, thank you, Cierra, for asking.  

Cierra 

You are welcome, Jody. 

Danielle, why don’t you tell us why home health care is so important for you? 

Danielle 

Home health care and important to me, because it gives me the independence of living in my own home which me and my wife purchased. And it allows me to have the supports when I go out in public to be able to function as best as I can because of noise problems, light issues and just all around stress and anxiety. And I also have the opportunity to be able to pick my own staff, and we’ve got 2 really good staff right now that are wonderful to have. 

And it’s just necessary to make my life a lot easier to have the help that I need without getting overwhelmed and eventually ending up back in the hospital again, or ending up with having severe problems with my autism 

Cierra 

Thank you. Danielle. And what about you, Diane? Why is home health care so important? 

Diane 

That way. I could live in my own home that I love with my wife, Danielle, and she is so precious to me. And we, I enjoy having my own home and that way staff come in, help me get dress, get ready. And some days I do stay in bed because of my arthritis. 

Some days it’s just so bad. But other days I do get up, do what I want, and just be who I am. And the staff that we have now, they let us be who we are. And they just, they just love us to death and we love them to death. And with, that’s one thing about staff that we like and will get along with, I really understand about our disabilities. 

Cierra 

Thank you. That’s really, that’s lovely to hear. And so let’s get into some of the major issues. So, Jody, what is some of the major issues that you’ve had over the years with your aids? 

Jody 

Because we don’t have enough people in this field, I don’t know if I would even have an aid on a particular day. And if I do, I don’t always know who that aid will be. This causes a lot of anxiety for me, because I don’t get to have a say over who comes into my house or when. I have to build my day around my staff, instead of the other way around. I don’t get to say who touches me in the most private of places. So the fact that we don’t have control is one of the main problems with the home healthcare industry. 

Thank you, Cierra. 

Cierra 

Thank you, Jody, for sharing that. Danielle, why don’t you share with us some of the major issues that you’ve had over the years with your aids? 

Danielle 

Some of the issues I’ve had where we’ve had aids that didn’t believe about all of my disabilities. They didn’t believe on, on my mental health problems. And I was literally just treated like a number at times, and without any regard to me being a human being. And they basically just put anybody they wanted in here without even consulting us ahead of time in the past. But now in that area things have begun to change. And also the fact that the one problem I have with the system is they want me to actually use transportation independently and because of all of my mental health and disabilities I currently cannot do any of it without having major assistance, because I get very burned out, and I get to the point sometimes where I will shut down. Or I will just have time where I just need to get into my room and have a weighted blanket over me and darkness. And there are staff that haven’t really respected that. But now I’ve got staff that actually do respect that. 

Cierra 

That’s great news! Diane, what are some of the major issues that you’ve had over the years with your aides? 

Diane 

Well, during time Danielle was in the hospital, and I had some good staff and some bad staff. gets underpaid too. Because most providers don’t get enough pay for staff to actually come in. 

Danielle 

I’ll add to that.  

Diane  

Danielle wants to add to that. 

Danielle  

What it is is basically they started off pay for staff at a very low rate, like around $14 an hour, and they stick at that level for quite a while, but then over time maybe they raise the pay up for the staff. But, otherwise, it’s just so underfunded underappreciated staff and that basically they just don’t get enough money, so we have a high turnover rate of staffing.

Cierra  

Thank you.  

Jody 

And, I do want to add most aids don’t even get $14 an hour. 

Cierra 

Thank you. Okay, so let’s, let’s talk about what we can do to improve the system. 

So, Jody, let’s start with you. How can the system be improved? 

Jody 

Right now I’m getting enrolled into a program called Self-directed. This means I will be able to hire my own staff. This is a big deal, because I will be able to have a say who comes into my house and when. And I will have a say in who gets to touch me. 

If they disrespect me, I will have the power to dismiss them. I will be able to have them come help me when it’s best for me. And I won’t have to work around their schedule. I won’t have to rearrange my life around the staff. And that is really awesome, that I will have more control over my life. I really believe we need to push this program so that more people with disabilities have control over their lives. 

And that’s how we can make home health care better. Thank you. 

Cierra 

Thank you, Jody and Diane, and excuse me, Danielle, how can the system be improved? 

Danielle 

One, the State needs to be able to paid staffing more, to be able to retain staffing and 2 Medicaid needs to direct more funding for the staffing pay level. Otherwise they’re just gonna continue having a high turnaround in staffing. And stop having the providers have more of the money instead. That needs to change as well. Also, maybe change out some of the control problems with the IR with other reporting problems like, yeah, logbook. And you know, cause it just. It just makes it impossible for us to really be self-sufficient without being monitored every little, tiny thing that we do 

Cierra 

Danielle, what’s an IR? Can you explain a little bit more about that? 

Danielle 

And it’s an incident report.  

Cierra 

Okay. And how is it used against you? Do you have an example? 

Danielle 

It’s use to basically state that, issue is with the client rather than with any other system out there. That’s not effective. And most of the time it usually puts all the blame on the client 

Jody 

Hmm 

Cierra 

Right like they’re like, it’s kind of a way to control behavior. 

Danielle  

Correct  

Cierra  

Thank you. Diane, what about you? How can this home health care system be improved 

Diane 

I agree with Jody and Danielle that really does need to let clients be…  

If you wanted to be treated, staff. If the staff wanted to be treated, you got to treat the client same way. You see what I’m saying? 

Cierra 

So increasing respect. 

Diane 

Right. And it’s gotta be 2 ways. You know, 2 way communication. And you got to learned to work with the client, how they move, how they do things, and they need to ask the client, what do you need help with or with cooking, or cutting up your food for ya’, stuff like that. 

Cierra 

I love that. Yeah. 

Diane  

Some can’t even feed themselves too much during, you know. It’s just sad to see staff won’t do anything for the client if they don’t want. 

Danielle  

There are staff that are like that. 

Diane  

There’s some staff are like that. 

Jody 

Yes, there are. 

Cierra 

Diane, you talked about transportation before. 

Do you want to add anything about improvements to transportation? 

Diane 

Well for a while I used to, when we had one staff that was with us for a while, and she was able to get the van for us, and that was with another company. 

Now that she’s back, for the company we’re in now doesn’t, does not have a van, so I have to rely on 

 Danielle  

cabs. 

Diane 

A cab or the hospital shuttle 

So the shuttle goes to the hospital and goes to the clinic. 

Around the corner of us, and they will help us during that wintertime, but other than that, if it’s during the summer, I, Danielle and I walk down, or a staff walk with me to the clinic. 

Cierra 

Thank you. Thank you so much for this conversation. It has been so productive. 

I learned so much and so I wanna go over a few of the things that that I learned about this. 

So home health care is so important because the key thing is, it enables people with disabilities to live life on their own terms, to be able to and and what that does is it reduces stress and anxiety which are some of the things that you listed that you that are part of your life 

And so some of the problems are that unknown people will come into your house unknown people will treat you with disrespect and touch you without consent or just touching touching you and being a stranger is just can possibly be uncomfortable. 

There’s no consultations with staff changing quite often, and sometimes people can have bad staff, and there’s often really high turnover. But all of you had some really great suggestions about how things could be improved. 

So we learned about a program called self-directed care where people with disabilities essentially become an employer. And so this allows a lot more control over the experiences that people are having inside their homes. 

And I just wanna add to the previous one I heard learned that living independently, like having your own home is so critical to your wellness, and that home health care, and particularly self-directed care can help with that. And then one of the other key things that can be improved aside from transportation, is paying staff more. 

Paying staff more will enable them, probably, to stay. And Danielle said it allows people to retain staff when people are paid more, and suggested that Medicaid it. The pay be dealt with through Medicaid, so that providers pass that money to staff and aids rather than retaining it for the company, and then, finally, that increasing respect between staff and client and client and staff are really critical ways, that the system can be improved. 

And so, if anybody who is watching this right now is interested in getting in touch with any of these 3 amazing advocates, Diane, Danielle, or Jody, you can reach out to the Indiana disability, justice communications Queen, I mean coordinator Jody  Michelle. 

You can email her at indisabilityjustice@gmail.com, or you can go to our website and find us there at iINdisabilityJustice.org. 

If you’re interested in learning more. Thank you so much. 

Ink Zentangle Highland Calf – Faerie Bear Art

An ink illustration of a highland calf who is galloping towards the right. This artwork contains an embedded words, "Productivity does not define your worth.  Your worth is unconditional."
An ink illustration of a highland calf who is galloping towards the right. This artwork contains an embedded words, “Productivity does not define your worth. Your worth is unconditional.”

About the Art

I created this shortly after my chronic lyme diagnosis and after beginning the first several months of treatment.  As my ability to work and be “productive” in ways that are rewarded by capitalism have decreased, I’ve been struggling to disentangle self-worth from ideas of productivity.  This is valuable and important and hard. I’m learning to listen to my body more and trust my own emotions.  I used to ignore pain, fatigue, and my emotional state to force myself through work.  Now if I cry, I know it’s because I’m too tired and I’m reaching meltdown status.  I need to stop and rest. Let’s create a world together in which people are valued for their humanity, not their productivity.


About Faerie Bear Art

Faerie Bear Art is an art adventure by Skye Ashton Kantola (she/they) founded in late 2016. Skye is a fat, white, trans, queer, and intersex, chronically ill autistic person. Skye’s art focuses on trauma healing and uplifting marginalized communities. 10% of all art sales are donated to BreakOUT! Youth, a QTPOC youth lead organization focused on abolition and decriminalization in Louisiana. In some cases, the profits from certain pieces are also split with collaborators.

Indiana Culturally Affirming Healthy Sexuality Education & Resources for People with Cognitive and Developmental Disabilities

This page will provide contact and program information for organizations in Indiana that provide healthy sexuality education supported by organizational policies:

AccessAbility

  • Type: disability services
  • Mission:   The result is that our communities are enriched through the full participation of ALL PEOPLE. Building advocates and inclusive communities.
  • Services: Provide individual consumers, governmental agencies, corporations and other non-profits with the tools necessary to ensure the acceptance, respect and inclusion of everyone. 
  • Location:  9105 East 56th Street Suite 308 Indianapolis, IN 46216
  • Phone:   (317) 926-1660
  • Fax:   (317) 926-1687
  • Email: info@abilityindiana.org
  • Website:  http://www.abilityindiana.org/

The Arc of Indiana

  • Type: disability services; Policy advocacy and direct services
  • Mission:   The Arc of Indiana is committed to all people with intellectual and developmental disabilities realizing their goals of living, learning, working and fully participating in the community.
  • Services: pooled special needs trust, advocacy network, support in applying for medicaid, medicaid waviers, SSI, SSDI, vocational rehab, career counseling, community living options, lifecourse framework, supported decision making, education for consumers and providers, health insurance education, audio and visual resources
  • Locations:  https://www.arcind.org/about-the-arc/local-chapters/ 
  • Phone: 800-382-9100
  • Fax: 317-977-2385
  • Email:   https://www.arcind.org/contact-us/ 
  • Website:  https://www.arcind.org/ 

Indiana Institute on Disability and Community (IIDC)

  • Type: disability services; advocacy, education, community services, research
  • Mission:   to work with communities to welcome, value, and support the meaningful participation of people of all ages and abilities through research, education, and service. 
  • Services: Interdisciplinary pre-service preparation and continuing education; Research, including basic or applied research, evaluation, and public policy analysis; Information dissemination; and Community services, including training, technical assistance, and model demonstration.
  • Location: 1905 North Range Road, Bloomington, IN 47408-9801 (https://www.iidc.indiana.edu/pages/contact-us-map )
  • Phone:  812-855-6508
  • Fax:  812-855-9630 
  • Email:  iidc@indiana.edu
  • Website:   https://www.iidc.indiana.edu/ 

Self-Advocates of Indiana (SAI)

  • Type: disability services; Personal Advocacy
  • Mission:   Self-advocacy is important because it is a way for people to know that all people, including people with disabilities, have rights. We help people understand that we want to be treated with respect. It is a way for our voices to be heard.
  • Services: education, state and local advocacy, resource consolidation
  • Location: 143 W. Market Street, Suite 200, Indianapolis, IN  46204
  • Phone:  317-977-2375 
  • Fax:  317-977-2385 
  • Email:  https://www.saind.org/contact-us/ 
  • Website:  https://www.saind.org/ 

The Village of Merici

  • Type: disability services; direct services
  • Mission:  The Village of Merici, Inc  provides residential and community opportunities for adults with developmental disabilities that promote a strong sense of community. By creating a sense of community we will create a sense of belonging.
  • Services: provides residential supported living and community integration services to individuals with developmental disabilities. The Village of Merici is an approved provider through the Bureau of Developmental Disabilities (BDDS) Waiver programs and is accredited through CARF International.
  • Location:  5707 Lawton Loop East Drive, Indianapolis  IN 46216
  • Phone: 317-292-9408
  • Email:   colleenrenie@villageofmerici.org 
  • Website: http://villageofmerici.org/

Credit

Post written by Skye Ashton Kantola, Assistant Director, Multicultural Efforts to End Sexual Assault, kantola@purdue.edu and  Cierra Olivia Thomas-Williams, Prevention Specialist, Indiana Coalition Against Domestic Violence (ICADV), cwilliams@icadvinc.org.