Dark Night of the Soul

The words below are the written words of Stephanie Winn’s poe “Dark Night of the Soul”. The video has her spoken words.

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Dark Night of the Soul

1 decade. It’s been 1 decade since my body turned on me, taking freedom and sanity in 1 fell swoop. Initiating a loop of nausea, dizziness, and headaches that takes my life and makes it something I do not recognize. The cries that emit from my soul are ragged and raw. I crawl to the bathroom, room spinning around, the ground no longer something I can trust. And all I know is I must find answers and a cure, but 10 year in I am no longer sure that they exist.

 

I am told to resist the dark hole that comes in these moments. Emotions take me to my end. But I do not descend. I wait for the recovering, the days of relief that make the suffering fade and my eyes are again able to see the beauty that is my life. When I’ve been stuck in bed and am now able to rise, the lies of sickness become instantly clear. My fear of lost relationships slips under the sea of love and support my friends and family always show me. I know the guilt of missing out is pointless as these memories are eclipsed by the constancy of my love. And my love is deep. 

 

One of the gifts reaped from the pain is a gratefulness that seeps into my very being for all of the daily scenes. Like the sound of my daughter’s laughs, the warmth of a full bubble bath, my husband’s kiss on my lips, and the delicious salt of my favorite chips. These moments are not lost on me. 

 

But, I am greedy. I want only the good all the time. This needy body of mine makes me sick as I tick off another day spent in the grip of chronic illness. So, I turn to my Maker, my Father, Creator. 

 

The same hands that hold me, molded me. Did they make a mistake or are they unable to take this away? I pray and I beg. I negotiate. Offer up 1 fate in exchange for another. Let’s make a deal. If you heal me, I’ll serve you forever. Never ask for anything more. 

 

But, deep in my core I know, the answer may be no or not yet. And if so, can I let go and even rejoice as I listen for His still, soft voice?

 

Oh daughter, this was not my plan, not the work of my hands. I hear your cries and I touch your soul. The miracle just looks different than you thought. I have fought for you each and every day in the spiritual battle you do not see. The sea is not deep enough to hold my love for you. I cover you with my wing and sing over you with rejoicing. I see your pain and I do not turn away. I stay and I will fill your cup. I will hold you up until this world passes into the next and you rest in me. 

 

Until then, it is enough that He who calmed the sea, resides in me. Bringing peace in the storm and light in the darkest night of my soul.

About the Author:

Stephanie Winn attended Ball State University and graduated with a Master’s degree in Speech language pathology. She has worked as a speech therapist for the last 10 years in nursing homes, home care, and the school setting. She is currently on medical leave due to her struggle with vestibular migraines and hashimoto’s thyroiditis. She is actively involved in Urban Light Community Church in Muncie, Indiana. Stephanie is happily married to Seth and they have 2 daughters, Zayla (age 10) and Aria (age 8). Stephanie enjoys spending time with her friends and family, reading, and going for walks.

In this picture, Stephanie Winn has long brownish blonde hair, wearing a light blue, button-up, long sleeved shirt.

 

 

 

 

 

 

 

 

Ableism and Parenting

About the author:

Hi! My name is Megan Deahl! I am a wife, momma, writer, disability advocate, animal lover, and avid crafter. Do you have questions about ableism? Please feel free to email me at deahldisabilityactivism@gmail.com. We can only eradicate ableism through education.

This is a photo of Megan and her family. Megan is in a power chair and’is leaning into Nate, her husband who is in his power chair. Alister, their son is sitting on Nate’s shoulders. Megan is wearing an organge dress. Nate and Alister are wearing red flanel skirts and jeans. All of them have big smiles. They are outside in front f colorful trees.

Unknown Cause

Unknown Cause

The artwork is a line drawing in marker with colored pencils for emphasis. The piece shows the merging of health, struggles with addiction, pain and diagnosis with visuals of a bloodstream flowing through pills, flowers, plants, quotes, medical bills, and diagnoses, some from doctors and some from friends, family, or acquaintances. Text: Live and Let Live; "fight flight and freeze behaviors are unconsciously reflexive"; Robotic laparoscopic hysterectomy; emotional abuse; Disorder, Unspecified 300.02; Insurance Denial; "What story are you telling yourself"; This, too, shall pass; to remove the uterus (womb); patient balance- $29,886.61, insurance balance; "When pain becomes chronic, the nervous system naturally becomes overactive"; pain 1-5 (worst); Depressive Disorder; "There is so much we don't know, and to write truthfully about your life, your own or your mother's... is to engage repeatedly with those patches of darkness, those nights of history, those places of unknown...(R.Solnit); post traumatic stress disorder.
The artwork is a line drawing in marker with colored pencils for emphasis. The piece shows the merging of health, struggles with addiction, pain and diagnosis with visuals of a bloodstream flowing through pills, flowers, plants, quotes, medical bills, and diagnoses, some from doctors and some from friends, family, or acquaintances. Text: Live and Let Live; “fight flight and freeze behaviors are unconsciously reflexive”; Robotic laparoscopic hysterectomy; emotional abuse; Disorder, Unspecified 300.02; Insurance Denial; “What story are you telling yourself”; This, too, shall pass; to remove the uterus (womb); patient balance- $29,886.61, insurance balance; “When pain becomes chronic, the nervous system naturally becomes overactive”; pain 1-5 (worst); Depressive Disorder; “There is so much we don’t know, and to write truthfully about your life, your own or your mother’s… is to engage repeatedly with those patches of darkness, those nights of history, those places of unknown…(R. Solnit); post traumatic stress disorder.

Meet the artist


Solomon, she/her, an artist
Solomon, she/her, artist

About the artist:

Stephanie Solomon (she/her) is the new Youth Program Coordinator with the Indiana Coalition Against Domestic Violence.  She spent over 3 years as Prevention Coordinator with the Youth Services Bureau of Monroe County, with a focus on promoting healthy relationships and environments for youth and families.  She is a graduate of Indiana University with 19 years of experience in the social service sector and is currently pursuing a Master’s in Public Health at Indiana University.  Stephanie is an adult ally with the Kaleidoscope Youth Community. She is passionate about primary prevention and building spaces that promote belonging for youth and families.  She enjoys karaoking to Barbara Streisand songs.

About the art:

The artwork is a line drawing in marker with colored pencils for emphasis.  The piece shows the merging of health, struggles with addiction, pain and diagnosis with visuals of a bloodstream flowing through pills, flowers, plants, quotes, medical bills, and diagnoses, some from doctors and some from friends, family, or acquaintances.  Text: Live and Let Live; “fight flight and freeze behaviors are unconsciously reflexive”; Robotic laparoscopic hysterectomy; emotional abuse; Disorder, Unspecified 300.02; Insurance Denial; “What story are you telling yourself”; This, too, shall pass; to remove the uterus (womb); patient balance- $29,886.61, insurance balance; “When pain becomes chronic, the nervous system naturally becomes overactive”; pain 1-5 (worst); Depressive Disorder; “There is so much we don’t know, and to write truthfully about your life, your own or your mother’s… is to engage repeatedly with those patches of darkness, those nights of history, those places of unknown…(R.Solnit); post traumatic stress disorder.

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From Today to Service… Other Above Self, From Oath to Death

Content caution: discussion of service to the United States as a veteran

From Today to Service… Other Above Self, From Oath to Death

I returned from a deployment to Afghanistan in 2010, yet there is a day in 2017 which has persisted in my mind with more fervor than any experience I had on deployment.  It was during the summer while I was on the road driving between appointments; I had to pull over.  That day was hard. Nothing prompted it, nothing startled me, and nothing could stop it once it started, at least nothing I had been able to figured out up to that point.  The flashback was as follows:

“Still getting my bearings of what my new position would be and the command structure I was going to fall under, the front gate to my base was attacked, my only solace was the Kevlar around me, the bunker I was in and the M-16 I carried.  I hadn’t even met the people I was going to be working with yet.  I was 25 years old when I sat down with a lawyer to draft my will… the gravity of my voluntary act finally sinking in. I turned 26 before I deployed… “Would I make it to 27?” crossed my mind more than I can count; and it was only day 3 of more than 270 left.”

By in large, my deployment was moderately uneventful save for several incidents: but this is not about them; this is about that day in 2017… and Today, and every day for that matter.

The thoughts and feelings never go away.  The memories and stories of people you knew never leave you.  The acts of honor, valor, heroism you saw or heard follow you.  There are countless other nuances and seemingly insignificant details of normally routine, often benign duties which craft the entirety of one’s memories.  What is the hardest for me, more often than not, is what all of it stood for and what it means to serve.  Forget the hate, the pop culture, the politicians, the money, the reasons why, the facts, the lies… NONE of it makes a difference.  Our Brother’s and Sister’s make the difference, Our ideals matter, Our values are significant… Our heritage is why we are proud.

When a fallen military member is laid to rest, a flag is presented to the next of kin…

“On behalf of the President of the United States, the [branch of service] and a grateful nation, please accept this flag as a symbol of our appreciation for your son’s / daughter’s / husband’s / wife’s honorable and faithful service and sacrifice.”

A grateful nation… many in society have forgotten how to act as part of a grateful nation.  Mass social media perverts these stories and glorifies rebellion, dishonor, and disrespect.  While these stories are not really the highlight of our society, the preservation of our Constitution (for which I fought) the First Amendment being part of it, allows for personal opinion.

Upon returning, I kept focusing on being productive, keeping my mind occupied, pushing all the bad stuff out.  Maybe that’s why my processing of deployment didn’t start until 6 years after getting back.  Now I deal with this when it comes up. I see my wife and family and love where my life has been to get me here.  I’m very proud of my service and continue to give myself in service to them, other veterans and my community.

However, when days like that happen… It’s very hard… you won’t know I’m going through it.  You don’t know I struggle to see my computer screen through the tears.  You don’t notice me pull to the side of the road because I forgot what I was doing or where I was headed.  You don’t see me avoid crowds.  You don’t see my head on a swivel.  You don’t see me hide my red face to avoid questions or sympathy.  I don’t want sympathy.  I don’t want to be known for my ailment.  I want to be known and recognized for my work, not for how my past affects me.  You don’t know what it means to be free the way a Veteran knows.  You don’t know the cost of keeping you free… you don’t know how we still pay the price long after returning for you to enjoy the liberties available to you.  You don’t know I would do it all again. You don’t know I would still die to protect you.

Only those who serve can truly understand this next quote:

“For those that will fight for it…FREEDOM …has a flavor the protected shall never know.” – L/Cpl Edwin L. “Tim” Craft, B Co 3rd AT’s, Khe Sanh Combat Base, February, 1968

Today happens, tomorrow will be better; but is that really how we are meant to live?  I know you can only take it a day at time when you’re dealing with your past, but there has to be more… Purpose does exist, so how do we find it?  How can we get our dignity back?

The story above is an illustration of the listless mental anguish which remains hidden from an ignorant society. The burden we carry so others may live in peace.  What follows is my own personal journey to find that meaning and interpret my purpose.  The days may have gone by, the past continues to get further away, however, there is one thing – one feeling – which never escapes; one which will never find peace – “Honor”

“I do solemnly swear that I will support and defend The Constitution of The United States…”

This one statement alone, binds us to a life of service.  Oh, what little understanding we have of this phrase when we first commit to it on day one.  As our duty time passes, we gain an ever-increasing understanding of what we’ve been called to do.  It is in Article I of the Military Code of Conduct where one understands better the first line of our Oath;

“… guard my Country and our way of life. I am prepared to give my life in their defense.”

But what truly is ‘our way of life?’  One need only look to our Declaration of Independence – our way of LIFE endowed to us, the individual LIBERTY [and responsibility] to be accountable for our own decisions as we journey on our PURSUIT OF HAPPINESS.  This description also embodies Article VI of the Code of Conduct;

“… I am an American, fighting for freedom, responsible for my actions, and dedicated to the principles which made my country free… “

We come to live and breathe this sense of purpose, to fulfill a mission, to protect America and her citizens from all enemies, foreign and domestic – this is our Honor, we were never asked, we never question, we no longer know any other way.  So when our time comes to trudge forward and pass on this duty to those who have and will come after us, we entrust them, we pity them because we know the burden they take, we are proud to call them family; but what of us?

When our requirements are now to assimilate as a civilian again, society expects us to ‘just go back to the way things were before you joined.’  Let me explain the absurdity of this suggestion – When I joined, I was 17 years old, not even out of high school when I signed papers and took the Oath for the first time.  The majority of our enlisted experience the same situation – to make this suggestion knowing what we know, doing the things we’ve done, and seeing the things we’ve seen (good and bad), is the most misunderstood, unrealistic, and wretched expectation of our Veterans.

“I can’t speak for all Veterans, but I can share my story in the hope it inspires others to not be defined by their past, and take ownership of the present to shape the future they are destined to manifest.”

Leaving the service is a struggle which cannot be explained.  I was part of something so big, entrenched in the corners of our globe, a cog in the greatest defense machine the world has ever known, fighting against the terror which edited our world forever on that fateful date in September… and just like that, I was done.  Where would I find that mission to be a part?  What vision could motivate me as I once was?  What greater purpose did I now serve?

“The only thing worse than being blind is having sight but no vision.” – Helen Keller.

After going through the motions of what I surmised was expected of me, I by sheer happenstance tumbled into the world of philanthropy.  I began by helping teens overcome their addictions and coached them towards deciding a better life for themselves.  Not aware of the gravity encountered in that line of work, I was also ethically tested.  Prior to my southern excursion, I too had made a poor decision when returning from a deployment, landing me on the wrong side of the courtroom; for almost two years I struggled to keep my head above water.

“Character is how others would describe you, Integrity is who you really are when others aren’t looking – strive to be better than the way people describe you.”

Don’t be afraid to walk away from a bad situation you have no control over.  Doing so helped define the next ten years of my life.  Nearing homelessness and holding my pride while I walked into that Martin County United Way in only shorts, t-shirt and flip-flops, I met someone with a passion fueled by the thousands of people she undoubtedly helped in her career.  Her dedication was radiant and easily transferable; she became the leader who would mold me into a new mission, who would instill in me the greater purpose I so desperately had been seeking – she saw the best in me when I felt I was at my worst, her name was Carol.  The greatest leaders bring out the best in others – I’m not sure she knows just what she is responsible for, but I’ll forever be grateful for the opportunity she gave me to work for, and learn from her.

While serving my communities, unbeknownst to me, a greater purpose was creeping in – one which I believe we are all intended to ultimately focus on and fulfill – but I digress.  For the last ten years, I have dedicated my work to improving the lives of those less fortunate in our society.  With an obvious affinity for working with Veterans, I became a Legacy Life Member of the VFW and now hold an officer position at a local post.  My experiences culminated in being selected as the Executive Director for a newly formed nonprofit, My 22 Veterans, aimed at reducing Veteran suicide.

After ten years in non-profit support work, I have begun shifting to my ultimate purpose.  I was built to serve – helping to improve the lives of those less fortunate, especially Veterans – but my ultimate Mission is to look after and provide for my family.  Every decision I make is to improve our family – this is my Honor – cherishing, protecting, and nourishing the gifts our Ultimate Commander in Chief has blessed me with.  By serving them, I serve him.

“As for me and my house, we will serve the Lord.” – Joshua 24:15

Service comes in many ways and we each find our own purpose in our own time.  And while it may take time after leaving the military, the best purpose comes from those you keep in your company and those you get the fortune to build a life with.

By Marco A. Cuevas, USN Veteran (OEF ’09-’10)
JR My 22, Inc., Executive Director