Created by Survivors of Violence with Disabilities for People with Disabilities & Our Allies
Personal Stories
This category includes posts by disability advocates (self-advocates, providers, and caregivers) whose stories lend additional perspectives on education, advocacy, and disability justice. All stories will include content warnings.
Video Description: Against a dark background, white finger-like things appear at the top. As the music plays, the finger-like things crawl down the screen.
BiPolar to me feels like someone is reaching in my mind with their fingers and messing with my emotions, motivations, and behaviors. The dark represents my depression, and the light represents my mania.
The base of the Processing code was written by Dan Shiffman, http://patreon.com/codingtrain, in his forward kinematics lesson. The music “Dark Trailer” was downloaded with a free licence from Adobe Stock. The rest was written in Java, Processing, by me, Jayson Powers.
About the Author: Jayson Powers is a mathematician at heart who enjoys computer programming. He lives in Muncie, IN, where he is the primary caregiver of his wife with cerebral palsy.
Using Art to Bring Awareness to Human Trafficking and Domestic Violence
Three roses in front of a bigger flower that is difficult to see because of the black back ground. The black background remains, but the flowers are in full bloom. The previously hard to see bigger flower is now a brilliant blue. The word, HOPE” is written above the blue flower.
*Please Note: IDJ does not align with any one religion, faith, or belief system. Instead, we offer a platform where people with disabilities can express their diverse experiences. Content contains Gina’s story about what happened to her when she was trafficked. Please take care when you read about what happened to Gina.
About the Artist: Gina Hope
I’m a survivor of human trafficking. During that time my spinal cord was injured (leading to constant severe pain & 17 surgeries involving my cervical & thoracic spinal cord causing a whole host of obstacles) and domestic violence (leading to rods & screws in my lower back). But despite how difficult each day & sometimes each minute is God has & continues helping me see good that can come of my circumstances & He’s never allowed me to give up. Around 7yrs ago, a friend met me every week for a year encouraging me to follow my dreams – he convinced me that I was not only capable but that I could accomplish amazing feats others could not because of the insights my experiences have given me. So, I set out to begin the sea of paperwork to start a 501c3 which is Living Legacy Of Hope. I’ve wanted to be an artist my entire life; but I’ve never been able to get on canvas anything close to what I envision.
However, I sought out to learn to paint as I had the idea of painting a Hope Card Collection. God helps me overcome obstacles such as difficulty holding onto the paintbrush because much of my hand is numb. This is the first painting I’ve been able to complete that actually looks like what I envisioned.
This particular painting came out of a very dark time as I had just been viciously attacked (enter rods & screws). The front of this Hope card is the Silhouette of Hope with the Silhouette of the opening Rose while the back is in full color with the Rose & HOPE brightly shining.
I’ve given this as a Sympathy or Inspiration card to remind the hurting there is always Hope = one of the most important things I say when speaking is that we can overcome no matter what we endure on this earth – although there might be dark times we are never without HOPE.
IDJ empowers people by giving them opportunites to share their insights and wisdom. This is a video of David Farver, a muti-dimensional human being sharing what he wants us to know about people with disabilities. People with disabilities can speak for themselves.
( Disclaimer: David mentions how he works in a sheltered workshop. IDJ recognizes the problemic nature of these work environments.)
David Farver: Speaking for Himself
About Presenter: David Farver was born in Bethlehem, Pennsylvania in 1981. He moved to Muncie, Indiana in 1985 where he still lives today. He was diagnosed with myotonic muscular dystrophy. He’s active in Special Olympics, Best Buddies of Indiana and Knights of Columbus. He has worked at Beyond I Can since it opened in 2004.
Shelby Wade (she/her) is facing the camera and smiling and she is standing in front of a rock wall. Shelby is a white woman with long red hair and she is wearing a dark top with white designs.
What do you like to do for fun? Hobbies?
Play with my dog Clyde, play cards with my Husband, watch documentaries, and explore the Olympic National Forest which is right in my back yard!
What does disability justice mean to you as you practice primary prevention?
From my experience, this comes down to two things: Inclusive services and education, and dispelling myths about the autonomy and sexuality of people with disabilities.
What are some resources that you have created or that you just love that you want to share (articles, toolkits, etc.)?
Do you have a favorite prevention activity or strategy you use to achieve disability justice?
Education both within the community and to their counterparts. Because violence, especially gender violence, is a matter of control, ableism adds a further layer to our prevention efforts. If we do not make dismantling ableism, and other constructs of power, a core tenant of violence prevention education, we will not do justice for this community. In addition, providing comprehensive sex education to people with disabilities that incorporates components of self-advocacy and what constitutes abuse, is critically important.
I would also love to share a unique work group that operates as a recovery practice for all survivors of violence, but is especially empowering for survivors who are disabled. As a way to practice reclaiming control, consent, and respect, survivors work with service dogs; giving commands and watching the animals respond to their request produces a chance for survivors to reclaim their autonomy in a therapeutic environment.
Does anything about primary prevention need to change to bring disability justice to the world?
Many community-placed organizations fall into the trap of what Vu Le has called trickle-down-community-engagement. Vu Le describes this as organizations who (1) offer services because they can, not because they were asked for or needed, (2) educate and advertise their services but find that sectors of their community still choose not to engage, and (3) either do not measure their impact, or when they do, find little to no successful impact. To put it simply, “you can’t just give three drops of water to your rainbow carrots, wonder why they are not growing, and then complain about the lack of color in your salad” (Vu Le).
Earlier, I emphasized the description of these organizations as community-placed. This categorization comes from one of my professors at Harvard, Harry Harding, who discussed the difference between organizations as described above, who are simply placed in a community, versus organizations and services that are based in a community. Community-based organizations are informed by their community, intentional about services, and inclusive both within the organization and in how they discuss the issue and engage with their community. In order for sexual violence prevention to be effective within the disabled community, we must recognize that people with disabilities can make their own decisions and that they are not sexless.
Harmful myths often close the door to working with the community to educate about consent, self-advocacy, and safe sex. An example of this is demonstrated in a South Carolina middle school who invited my prior organization (shortly before I worked there) to come and give sexual violence prevention talks to their students. They had the prevention educator teach the same presentation to one grade at a time, one period after the next, the whole day. However, this disrupted the students in special education as it conflicted with their schedule. So instead of finding a different option, or tailoring the presentation to be inclusive of the learning styles of ALL students, the school had the special education class sit in on every single talk, the entire day. Not only did the school send the message to the special education students, and the rest of the school, that they were an after-thought, but they did not give the prevention educator the information and tools needed to provide a presentation that worked with all student’s needs. This event, reported to me by my organization when I came on board, made it evident how primary prevention efforts were missing the mark in serving the disabled community.
Where you practice primary prevention & disability Justice (location, organization, which levels of the SEM, typically):
I worked in primary prevention of sexual violence for three years as the Prevention and Education Coordinator for an adult crisis center in Charleston, SC. I also served for two years as the Chair of a three-county wide Sexual Assault Response Team (SART) in the low-country of South Carolina. Currently, I work for the Medical University of South Carolina’s National Crime Victim Center which is housed in their Department of Psychiatry. In my role as the Program Coordinator, I work on Project BEST, a state-wide collaborative effort to use innovative community-based dissemination, training, and implementation methods to dramatically increase the capacity of every community in South Carolina to deliver evidence-supported mental health treatments (ESTs) to every abused and traumatized child who needs them. In addition, I work in a similar capacity under a grant for the National Mass Violence Victimization Resource Center’s Training and Technical Assistance division. My violence prevention and advocacy work has continued both within this work and outside it as I independently pursue research on community-based primary prevention, response, and resilience.
Are you available for consulting?
Yes! Working with diverse populations eager to learn about and collaborate on program improvement and community engagement is my passion. My area of concentration focuses on violence prevention, particularly sexual violence, and how we can create intentional, equitable, and sustainable community prevention and response strategies and services.
Shelby first worked with people with disabilities in high school as a peer support for Integrated Learning Students with a range of disabilities from various cancers; autism spectrum disorders; blind, deaf, and hard of hearing; and many others. These students helped spark her interest in working with the community. Following high school, she worked with cognitively impaired students at supplemental education centers before becoming a behavior technician at an autism services organization. During college, earning a bachelors in sociology from Sonoma State in CA, Shelby became the lead behavior technician, the community group lead, and the trainer of all new employees on Applied Behavior Analysis (ABA) for her organization. She won awards for passion and for Interventionist of The Year. While she enjoyed the work, Shelby wanted to move on to spaces that allowed her to empower people with disabilities from a violence prevention standpoint, something she connected with through personal experiences. After moving across the country, Shelby began working at a local rape crisis center in South Carolina. There she learned where prevention work was failing the disabled community and where disability justice organizations needed support in violence prevention. During this time, she served as the chair of a three-county-wide sexual assault response team (SART) and went back to school to get her graduate certificate in Nonprofit Management from Harvard.
Shelby currently works for the National Crime Victims Center on two grants, one with Project BEST which seeks to provide evidence-based treatments to children and their families across South Carolina, and another under the National Mass Violence Victimization Resource Center where she is helping communities prepare for, respond to, and build resiliency after a mass violence event. Shelby’s passion for this work continues in her free time as she continues to research prevention efforts, write papers, teach, and provide consultation. Currently, Shelby is focused on neurobiology of trauma; inclusion as it relates to community engagement in violence prevention; program improvement in sexual violence organizations; and non-acute comprehensive medical advocacy for survivors of sexual violence.
A bit about her personally… Shelby is the wife of 8 years to her amazing partner, Jacob, who is an active duty member of the US Coast Guard. She is a dog mom to a 3-year-old, rescued, blue heeler mix named Clyde who is the best good boy there is. Shelby lives in the Pacific Northwest and enjoys going on hikes, listening to records, watching documentaries, and taking bubble baths!
Shelby Wade is the author of her interview. Cierra Olivia Thomas Williams is the interviewer and posted this to IDJ.
