Sitting with the pain: Supportive connection in relationships

Sitting with the pain: Supportive connection in relationships

BY TRISTEN TAGGART | Originally published SEPTEMBER 7, 2021 by Forge

The isolating effects of interpersonal trauma cannot be overstated, especially in a social media-driven society. The technological age presumes that we are always on, available, and connected. Trauma, however, often demands periods of withdrawal, whether because someone is controlling who a survivor is allowed to see and connect with in the current moment or because healing from violence can be a full-time job that doesn’t leave survivors with much capacity to maintain social relationships during intense processing times. Realistically, both of these situations are often when survivors need to be engaged with supportive relationships and community the most. But, as many folks who experience the similar social withdrawal that comes from deep depressive episodes can attest, the longer survivors go without engaging with their relational lifelines, the more impossible it can feel to reconnect. Shame can convince survivors that their family and friends would never understand what they’ve experienced, would blame them for that experience, or wouldn’t be able to help anyway so there is no point in “burdening” them with their pain unnecessarily. Trans and nonbinary survivors may face additional shame and hesitancy around reaching out if they are impacted by dysphoria in social situations; their gender identity or presentation has changed since the last time they connected and they’re worried about the other person’s reaction; they’re afraid that their identity or presentation will be blamed for their pain in ways that invalidate the survivor’s actual experience; or, conversely, people won’t be able to understand the ways that gender is implicated in their struggles for healing.

The longer survivors go without engaging with their relational lifelines, the more impossible it can feel to reconnect.”

As pernicious and convincing as these shame-based messages can be, they may not be based in truth. Good supports know that trauma isn’t the survivor’s fault and that healing through community and storytelling is possible no matter how tremendous the hurt. It’s commonly estimated that 1:3 of all girls/women and 1:6 of all boys/men will experience sexual assault at some point in their lives. Additionally, at least half of trans and nonbinary people of all genders and none are likely to experience sexual or intimate partner violence at least once over the course of their lives (Williams Institute, 2015). Given these statistics, it’s very likely that survivors’ support systems are made up of people who are survivors themselves and are honored to bear witness to the healing process, no matter how messy, with genuine empathy and resonance. There is incredible power in survivors supporting each other like this, holding what feels unspeakable with courage and understanding until hope returns, because they have already been there and know that it does get better. Even if the survivor has experienced this supportive reaction before, it can be hard to trust that it will be there again through another difficult period. Because of this, I encourage family and friends to do the proactive work of reaching out to the survivor periodically just to remind them that they are thought of (unless doing so would compromise the survivor’s safety in a dangerous relationship). This doesn’t have to be emotionally intensive. Sending cards, memes, songs that remind you of your loved one, or pictures of your pets or garden are all great ways of reaching out.

Sending cards, memes, songs that remind you of your loved one, or pictures of your pets or garden are all great ways of reaching out.”

It’s important for friends and family members to remember that not hearing back from the survivor doesn’t mean that your attempts to reach out are unappreciated or wasted. As tempting as it may be to give up as calls go unanswered and birthdays pass unacknowledged, it’s vital for supports to remain just that and keep reaching out with things that reconnect the survivor to the world outside of trauma, trauma work, and traumatic social media timelines. If you are a survivor yourself or have experience with depression or other mental illnesses that lead to social withdrawal, it may be helpful to reflect on difficult times when you had trouble reaching out; use those times to ground your commitment to stay compassionately present and available, and ask yourself what would have been most helpful to you during those times to guide you if you feel at a loss and aren’t getting feedback from the survivor. My best friend, Frankie, has developed incredible intuition, based on his own survivor experience, for balancing reaching out to listen or have fun with letting the phone go silent so I can have my own processing space to work through difficult material, especially if I’ve fallen back into old patterns. Being held in that unconditional, deeply empathetic and empathic love has been invaluable for my healing journey. No matter our genders or histories, this kind of loving survivor support space is something that we can all work to cultivate for each other with patience, attunement, and compassion.

To this end, without exhausting yourself (or your loved one!), remind the survivor that they have access to supportive relationships and community, no strings attached. Disclosing your own survivor status is a complicated decision, so know that there are ways of “relating in” to the survivor’s experience that mirror the safe space my best friend Frankie held for me but don’t require you to share your own trauma history if you don’t want to. “Relating in” often works by relating to the feelings the survivor is expressing, even if you can’t (or don’t want to disclose that you can) relate to the experiences that surround the feelings. So, while flashbacks or dissociation may be largely unique to people who have experienced trauma (with notable and valid exceptions!), the feelings of grief, rage, or shame that often accompany them are universal to being a human. Those universal feelings are the foundations that “relating in” builds bridges on. When you relate in, you remain conscientious of steering clear of Oppression Olympics, putting the survivor in a caretaking role for your feelings or dominating their feelings with your own story, and taking any liberties to analogize the survivor’s experience with your own. Instead, it might be helpful to take a more empathy and agency-centered approach. Compassionate phrases like these can be a good place to start, but always feel free to play around and make your own: “No wonder this is so hard for you. I had a hard time too when…”

  • “I’ve never been in your shoes, but I know what grief feels like in my body and…”
  • “What you’re sharing is making me think of something in my own life. Do you mind if I share it with you, or would you rather keep talking about your experience?”
  • “I’ve experienced a lot of rage before, too. Let me know if you ever want to talk about some skills that worked for me over the years while I learned to cope with it- reinventing the wheel is no fun!”
  • “Remember the cousin I told you about? Ze went through something similar. Supporting hir helped me understand that… is that true to your experience?”

“’Relating in’ often works by relating to the feelings the survivor is expressing, even if you can’t (or don’t want to disclose that you can) relate to the experiences that surround the feelings.”

In general, the same guiding principles apply for supportive family and friends who are also survivors and decide to disclose their trauma histories as part of relating to their loved one. In this case, however, making three additional points becomes necessary: First, the most important step to any disclosure is getting consent from the other survivor before sharing your experience, just like it’s important to be asked for consent before a loved one shares their story with you. Without consent, even well-meaning disclosures and storytelling can be another form of violence for people who are already in distress and are looking for support but are asked to hold another burden as a perceived condition of receiving it. If it is not a good time for either of you to receive or offer disclosures, you can continue “relating in” with each other without talking about your own trauma histories until/unless that changes.

The most important step to any disclosure is getting consent from the other survivor before sharing your experience, just like it’s important to be asked for consent before a loved one shares their story with you.”

Second, tact and thoughtful boundaries become even more important in disclosure situations to mitigate the likelihood that the survivor receiving support feels triggered rather than helped by the disclosure or the conversation devolves into an unhelpful exchange of “war stories” that do little except reopen and display painful wounds. Using the compassionate responses outlined above as a guide can be helpful in keeping disclosures healthy and helpful for all involved, as can taking temperature checks about how the survivor feels surrounding the disclosure and if they need any extra support while processing that information. Prior to making a disclosure, friends and family might benefit from checking in with themselves about what they feel is safe and useful to disclose, versus what material may be relevant but is still too raw to be emotionally safe to share in a support role at this time. Generally, if the disclosure doesn’t check both boxes of being safe and useful to everyone involved, it should probably wait to be shared elsewhere or at a later time.

Generally, if the disclosure doesn’t check both boxes of being safe and useful to everyone involved, it should probably wait to be shared elsewhere or at a later time.”

Beyond relating in and potentially offering empathy through your own disclosure, it could help the survivor feel safer to reach out if you articulate clearly what kind of support you are/are not able to provide so that they don’t have to worry about “burdening” you- they already know what would make you feel good to be able to help them with in their healing. For example, some friends might be thrilled to receive 3 A.M. phone calls or urgent needs for rides while others have a strict 10 P.M. bedtime but would be delighted to help pick up meds or give transportation to therapy on Fridays. Some supports would be honored to help carry the story of the survivor’s traumatic experience while others are better suited for distraction, humor, and restorative fun. So often support can feel ephemeral and nebulous when it comes time to actually ask for it.  You may want to consider a homemade version of FORGE’s “I’m Here for You” cards which can list out things a supportive friend/family member is able to provide and empower the survivor to more easily ask for what they need, in addition to ordering the ready-made ones FORGE designed. The cards are fully adaptable to life under COVID restrictions and affirm that no matter their skills and resources, every person in a survivor’s support system is a vital, healing link with something meaningful to offer.  Want a stack for the survivors in your life? Fill out this order form and get as many as you need for free! Articulating what support you can provide can help the survivor feel confident in their decision to contact you when they are ready to reach out. Once the cards are filled out, it can be helpful to organize the support system in what Mia Mingus calls a “Pod Map.” This is another hands-on tool for mapping out communities of support, accountability, and resilience so that everyone’s gifts and unique relationship dynamics can be tapped into in the most affirming ways possible.

Articulate clearly what kind of support you are/are not able to provide.”

The value of patience cannot be overstated when supporting a loved one through difficult seasons of healing. Certainly, it is crucial to be patient with the survivor themselves while they navigate common feelings of shame, doubt, anger, and profound grief as part of the process of healing from sexual or intimate partner violence. These feelings often come in waves and their pattern, just like all of healing, is not linear. As discussed in this post for survivors, experiencing increased traumatic intrusions is often actually a sign of how much progress the survivor is making after trauma; they mean the nervous system is recognizing that it’s safe to process material that was previously off limits due to lack of safety and stability. From the outside, though, an uptick in these symptoms can easily concern family and friends that the survivor is backtracking or needs to be taking a different approach to healing. Patience and self-education about how trauma is released on a neurobiological level (Dr. Peter Levine’s excellent book for laypeople, Waking The Tiger (1997)  offers an overview on this complicated and evolving field of study) can help prevent well-meaning conflicts with the survivor. These rifts are common when family and friends misdirect empathy for the hurt the survivor is (re)experiencing into nonconsensual suggestions, criticisms, or pressures to heal in any way other than what the body and mind naturally need, a need which may be beyond the survivor’s ability to articulate. Family and friends who are survivors themselves may fall into comparison traps and pressure their loved one’s journey to look more like their own, while folks who aren’t survivors are more vulnerable to underestimating how difficult healing actually is. When family and friends educate themselves about how traumatic material is stored and processed in the body and mind, they become better equipped to support the survivor with compassion and reliability through the vicissitudes of the healing journey. Because this is an evolving field of study, there is always new learning available even for people who are the experts of their own survivor experience. Educated supports can also become allies in challenging messages of shame, self-blame, and pressure to heal better/faster because they’ll be equipped with the research to show the survivor that where they are is exactly where they’re supposed to be and it does get better, it just can’t be rushed. As Oprah writes in her new book collaboration with renowned psychiatrist Bruce D Perry (What Happened To You? Conversations on Trauma, Resilience, and Healing) “What you’re really looking for is somebody to reinforce the idea that Hey, I’m not crazy. I’m thinking or feeling this way because of something that happened to me, and I’m having a reasonable reaction. And that person validates that for you.” (2021, p. 115). When supports come from a place of understanding how trauma works, the validation we offer each other can be all the more grounding and compassionate because it can clarify what otherwise may be unsettling healing patterns that shake up the bodymind.

No matter their skills and resources, every person in a survivor’s support system is a vital, healing link with something meaningful to offer.”

Patience and self-education doesn’t just apply to supporting the survivor, however! It’s often necessary for friends and family to cultivate compassion and insight for their own process in coping with their loved one’s healing journey. While many resources focus on how to support the survivor, as a loved one, it’s key to engage in your own self care, too. These are valuable practices for all human beings to commit to, but are especially important for folks who are confronting trauma even if the trauma did not affect them directly. This is especially true for support people who are also survivors. FORGE’s comprehensive “Guide for Partners and Loved Ones of Transgender Sexual Violence Survivors” is essential reading for all support systems; in addition to unpacking what trauma is and how trans and nonbinary folks may be uniquely affected, the Guide also provides extensive resources aimed at preventing secondary traumatization, with special considerations for family and friends who are survivors themselves. We know that secondary trauma can cause the same activated nervous system and fight/flight/freeze/appease response as if one had undergone the trauma itself. As the guide explores in depth, family and friends can reduce their likelihood of developing secondary trauma while supporting a loved one through their healing journey by practicing regular, holistic self-care; staying engaged in activities that foster resilience, which could look as diverse as Improv Theater, connecting with a harm reduction or 12 Step community, playing kickball with your neighbors, or community service; having dedicated space to engage in storytelling in healing relationship, whether it be with a therapist, spiritual mentor, or family and friends support group; and, setting and keeping boundaries around how much exposure to trauma and trauma work is healthy for you so that you don’t become flooded or made responsible for someone else’s healing. These boundaries are often helpful to extend to social media, which can seem to overflow with people posting about their traumas and their effects for constant consumption. As someone involved in directly supporting a loved one through their healing journey, one of the kindest and most responsible things you can do is ask yourself how many of these other stories you realistically can/want to hold, and then keep that limit.

It’s often necessary for friends and family to cultivate compassion and insight for their own process in coping with their loved one’s healing journey.”

Relationships are key to the healing process. By practicing skills like relating in, offering compassionate and consensual disclosures, sending cards or silly memes, being committed to self and community education, and practicing self care, family members, friends, partners, and other loved ones can play invaluable supportive roles in survivors’ healing processes, while maintaining their own healing if they are a survivor themselves. The pandemic may have made it clearer than ever how much people need each other, and tools like FORGE’s “I’m Here for You” cards and “Guide for Partners and Loved Ones” exist to model what supportive, resilient, empowered community can look like for survivors and loved ones so that it’s not so much of a guessing game. Do you have other tools and tips that have worked for you and your loved ones? Feel free to join the conversation online by connecting with us on FacebookInstagram, or Twitter!


Tristan Taggart

Hub contribution by:

Tristen Taggart
they/them/theirs
Disability and Trauma Project Coordinator
Email: tristen@forge-forward.org
Websites: http://www.forge-forward.orghttps://trans-survivors.com/blog/

Bio: Tristen Taggart is an agender antiviolence activist pursuing their Bachelor’s Degree in Gender, Sexuality, and Women’s Studies and Political Science at Virginia Commonwealth University. Tristen joined FORGE as a Policy and Programming Intern in 2018 and now works as the Disability and Youth Trauma Specialist. Tristen is a queer survivor, community activist, scholar, and direct-support volunteer with an evolving focus on the intersections and divergences of queer survivorship, disability justice, and abolition in the lives of young people. They are thrilled to bring their passion and curiosity to FORGE from their hometown in Richmond, Virginia.


https://forge-forward.org/collections/trans-survivors-speak-out/
Voice of Healing: Trans and Nonbinary Survivors SPEAK OUT is an exciting collaborative project being launched by the survivor- and resilience-focused organizations FORGE and MenHealing.

Voices of Healing: Trans & Non-binary Survivors SPEAK OUT is a collaborative effort between FORGE and MenHealing designed to support, uplift, and foster the resilience of trans and non-binary** survivors of sexual victimization*** (SV). 

The project focuses on using creative expression — words, movement, art — to empower trans survivors to share their story, connect with others, and enhance healing for both themselves and the broader community.

Please visit the project website for information about the project and an application to join!

Do you want to contact FORGE or learn more about FORGE? please visit www.forge-forward.org and/or www.trans-survivors.com 


5 Political Campaigning Tips for Candidates With Disabilities

 

Many people with disabilities want to see changes in their communities. However, running for office to enact those changes can seem like a daunting task in a society with so many barriers. But people with disabilities can make a positive impact by getting involved in politics. And with resources from advocacy organizations like Indiana Disability Justice, running for office and winning is entirely possible! If you’re interested in launching your own campaign, follow these steps to turn your dream of running for office into reality.

 

Register for the Ballot

 

First, you’ll need to research ballot access rules for candidates in your state. Each state has its own rules, and you’ll have to meet every requirement and submit all of the necessary paperwork to earn a spot on the ballot. Once you’ve taken care of these tasks, it’s time to assemble your team!

 

Choose Your Team

 

You can’t run your campaign entirely on your own – you need a great team around you! Even if you have a limited budget, Aristotle recommends hiring a fundraiser, a campaign treasurer or accountant, and a voter contact manager at a minimum. You could also consider bringing a campaign consultant or digital marketing expert on board.

 

Before choosing your team, you’ll want to establish an organized system so that you can keep track of staff productivity and even pay them easily. Choosing platforms that manage field personnel effectively through GPS mapping can give you better visibility of their activities on the campaign trail, which, in turn, makes it easier to schedule staff movements and shuffle tasks when needed.

 

Finalize Your Platform

 

You might have vague ideas for key policy items in your platform, but now is the time to stamp out the details. By conducting research on local voters’ positions and concerns, you’ll be able to determine which issues are most important to the people in your community. This will help you polish your platform and decide which policy proposals to highlight in your advertising strategy.

 

Promote Your Campaign Online

 

Today, political campaigning has gone digital. While print, TV, and radio advertising still matter, campaigning online is a low-cost option that will expand your reach. You’ll need to build a campaign website, set up social media accounts for your campaign, send out an email newsletter with campaign updates, and invest in paid advertising across popular social media platforms. You can also use social media to network with organizations that fight for disability justice and let them know about your campaign!

 

Plan Accessible Campaign Events

 

You can move forward with a variety of fundraising methods, but fundraising events will allow you to spend time with your potential future constituents face-to-face. Get in touch with venues in advance to discuss your necessary accommodations. And to ensure your events are accessible for all who wish to attend, EventMB recommends planning for ease of movement, providing appropriate signage and interpreters for those who are visually impaired or deaf, and making sure that service animals can accompany their owners.

 

At events, you can form real connections with your voters. While it is not a requirement, you can even share your story of living with a disability and how it has informed your political views and overall campaign platform.

 

Today, the voices of people with disabilities are needed to influence change. By getting involved with the political process, people with disabilities can shift policy and transform society for the better. With these tips, you’ll be well prepared to get your own campaign off the ground!

 

Are you looking to connect with other people with disabilities or find supportive resources? Indiana Disability Justice is working for education, policy change, and advocacy. Subscribe for email updates through our website today!

 

Photo via Pexels

About the Author:

Ed Carter has worked with clients of all ages, backgrounds and incomes. About 10 years into his career, he saw a need for financial planners who specialize in helping individuals and families living with disabilities. www.ablefutures.org

COVID and Being Medically Fragile with a Disability


Hi, my name is Meishy and I live at home with my mom, Cheryl. She is helping me write
this because I am a quadriplegic and unable to write and dysarthric and unable to speak. However, I want to tell you about my experiences of surviving in the world of Covid 19. I know all of you are having to survive this as well, but I am on a ventilator 24 hours a day, so if I get this virus, I have a 99% chance of dying, so that is scary to me. I want to tell you about all the things people have done to try to protect me and keep me safe so you know what people can do to help keep you safe too.


I have not left my room since February 18 of last year when I went to see Dr. Tolley at the pain clinic at Riley Hospital. That was right before Covid burst on the scene. In March I was told by my doctors that I needed to stay in my house and not leave for any reason; that my mom, who is a nurse, and my nurses would need to take care of any problems at home. The doctors made sure that I had all the medications that I needed (antibiotics, meds to thin my mucus, etc.) were on hand so they could be started if I needed them so I did not have to make a trip to the emergency room. I am a palliative care patient because I no longer have any veins that are good enough for IVs, so all my antibiotics must go through my stomach tube.
I have needed these medications a couple of times during my isolation period, and it has been wonderful to not have to go to the hospital to get them. My doctors have also been great about doing all my doctor visits via virtual visits. Mom holds the phone up and we talk with the doctor about what has been happening with me and we are able to do our appointments that way. It has been amazingly effective.
Another important thing is that the only people that I have seen since I left the house are my mom, my two nurses, Steve and Shannon, my therapist Jaime, and my aunt Susan. All of them do things like wearing masks and gloves when they get close to me if they are not feeling well. Mom even had to take care of me in November when she had Covid and managed to keep me from getting sick. She wore her mask, her gloves, and washed her hands a lot. She also kept herself in the other room except when I needed something bad, just so she could keep me safe. I did not get sick at all.
I cannot say it has not been a little lonely, but I have my iPad and my DVDs to keep me busy and happy. Those are the things that I really enjoy. I plan to keep on doing what I am doing for as long as I need to do it, and I hope you will all do the same. Please remember that masks and social distancing do work. I am proof of that and stay safe.

Woman with brown skin and long black hair, wearing a pink dress with a fierce look on her face.

About the Author:

Meishy was born in Philadelphia and lived in a foster home there until she met her adoptive mom. They flew home to be a family on 9/20/2001, right after the planes started again. Meishy attended Shelbyville High School. She loves all things Disney, but especially the princesses. She spends her days watching movies and surfing the internet.

Taking Up Space

*Image description* Child in a pink wheelchair with blue jeans and a pink shirt that reads ‘Warning! I always win at musical chairs’ with her hands atop her head, and her mouth open wide in a silly face.

Too much. Too loud. Too vocal. Drawing attention. Advocating loudly. Never satisfied.

In the space of a few weeks, these words became loud in my mind. Back to school meant lots of conversations, text, and e-mails. Needs. Disagreeing with people, and working really hard to come across diplomatically. My mind bent over gasping for air while trying not to throw up. Not because it was bad. Or, received poorly. But, because advocating is hard. And, scary. Necessary. While invoking fears that if things are pushed too hard, too loudly, or we just take up too much space, my children could suffer the repercussions. Part of me wants to apologize for speaking up at all. Making waves. I can feel it. It’s too much space out of a whole lot of kids with needs. We’re not staying in our area.

A trip to the park buzzing over the excitement of a new swing. One I can roll a wheelchair up on, and watch my daughter lean back and smile in the breeze. I pull up, and immediately feel all the blood rush to my face. They’ve built a swing. A whole separate area for kids with disabilities. I can’t believe it. How did this happen? So I speak up. I arrange meetings and have hard conversations. I listen, and try to understand. I tell them what I want, knowing the cost is astronomical in a Midwestern city that has lost its factories and is struggling to survive. And, I know, I’m taking up too much space in the financial agenda of a city.

We’re out. My daughter is excited. She makes her noises. Grunty and screechy. Over and over. It’s loud. People move away or stare. They don’t know how to respond to it. She’s just communicating. We’re used to it. But, all of a sudden, I know. Too much space. We are occupying more than our share of the noise level.

Sunday morning. Front row during worship because that’s where my daughter wants to be. She can see all the instruments. The singers. There’s room to dance. And, a few times, she makes her way on stage and just sits there, watching everyone, dancing, and sometimes even singing. I breathe deep and purposeful to slow my heart, thankful I can’t see anyone behind me. She darts quickly to make an attempt at grabbing the guitar, and I sprint on stage and grab her. This sort of thing repeats a few times, amidst her other antics of trying to get me to hang her upside down, do flips, and use me as a jungle gym. I can feel it. Sweat is starting to pour out of me. We’re taking up more than our share of space. Drawing attention away from the things people want to be focusing on.

The tears are no longer staying just behind the surface. They spill out onto my cheeks. I’m reminded how long it took for people like her to be allowed any space in society at all. Their space used to be one that hid them away. Gave them less area than was theirs. Took a family, an education, self worth, outdoors, human interaction, dignity, and at times, their lives.

I drop her off at Sunday school, and slink into the back of the church. The weight of the past week of advocating, and feeling too much settles in. I’m self conscious from the worship time, and uncertain whether bringing her in for it, no matter how much she begs, is truly the right thing to do. Our pastor stands up, talks a little about the set up of Sunday school, who goes where, when. And, out loud, in front of everyone, welcomes my daughter by name to be part of worship as she sees fit.

It’s okay for her to take up more space now. To grab back what was denied to so many before her. To loudly declare that she is alive, and has worth. This is her time. Her place. And, we will be here, taking up more than our share of space.

About the Author:

Image Description: Andrea has long light brown hair and is smiling broadly. She is wearing a white top, a silver necklace, and dangling earrings. Trees are in the background.

Andrea Mae is a mom, advocate, writer, and special education aid. She spends time caring for her three children: juggling therapies and specialists, reading, hiking, kayaking, hammocking, eating Reese’s, and being followed around by her dog-Daisy.. She is active in her neighborhood and community, advocating for the rights and needs of people with disabilities, and speaking on the topics of disability and theology. She is currently obtaining her degree in special education.