Excerpt from “Lack of Appeal” by Nick Valenzuela

If you enjoy the following excerpt, you can purchase the full novel on Amazon. Thank you.

“Mr. Chair . . . Mr. Vice-Chair . . . if I may . . .” Jonah methodically asks as a statement, since he’s about to address the board and the membership, ready-or-not.  “–Excuse me, Jonah Penzik, advocate, professor, Disability Action Network board member, and a person with a disability . . . I hear what you both have been saying, Lester, Jonathan . . . and, I know I’ve missed the last meeting or two here, so please forgive me if I’ve missed some key things while I’ve been gone.  But, what I’m hearing, is that the Disability Action Network is having meetings with the Civil Relations Commission, and Public Works, and even trying to do so with the state Civil Rights Commission.  And maybe talking is good, or can be good, with what’s going on, I don’t know, since I haven’t been able to be at the last meeting, like I said.  But, what I do know is that–Jonathan: I, myself, have been a Chair of the Civil Relations Commission, back in the 1980s, when there was just an Anti-Discrimination Panel of Commissioners.  And, what I learned at that time, was that sometimes, all the talk in the world may sound like things are good, sound like things are going somewhere, and everyone gets their assignments from the meeting, or their promises are made to everyone, or there’s a commitment to change . . . and then, they all meet again for the next meeting (!).”

Jonah rears up some in his seat, breaking no stride.  Same with me on my notes.

“What I propose, Mr. Chair, Mr. Vice-Chair . . . Disability Action Network membership . . . what I propose is, is that this coalition retain an attorney, or maybe even a team of attorneys, and, quite frankly, if nothing is being done, substantive, as it sounds like to me, then, we sue the bastards (!).  As many of you know, I was a lead Complainant in the 1970s in one of the first lawsuits filed under the Rehabilitation Act against the federal government, back when the federal government was discriminating against us, as people with disabilities.  And this was long beforethe ADA, the Americans with Disabilities Act, before the ADA was passed, through our efforts to lobby Congress, when we got out of our wheelchairs, when we got on our hands and knees, and we climbed the steps of every god damn federal building in Washington, to make our point, that people with disabilities have rights.  We have rights, we are people who are discriminated against, just like our other brothers and sisters who’ve been oppressed throughout recent history in this country, based on their race . . . their color . . . their religion . . . their labor exploitation.  People with disabilities, we’re looked on like garbage–pardon my language, but it’s the truth, and we have to empower ourselves first.  And when those agencies, like the ones that–excuse me here, Alex–Alex here, he works for the Civil Relations Commission, and the other agencies like the state Civil Rights Commission, the Mayor’s office, Public Works . . . when they don’t do their jobs, then you sue them, too!”  Jonah pauses.  “Now, I know we, as a Network, have limited resources, and at this point, not to be offensive to anyone, but I don’t know how viable we are as a coalition, to engage in litigation, to force these do-nothing agencies to make these changes.  Jonathan already spoke about the lawsuit in the public accommodations case, the Bar & Grille, that treated George like crap, and action was taken, and through the courts, not through talking.  We as a coalition have to decide where the best course of meaningful action is to be taken, and the whole time that we talk, in meetings with the Civil Relations Commission, and here at these monthly board membership meetings, the streets: they are crumbling.  And literally: they’re falling apart, and here, we–I advise us, Mr. Chair, to go ahead and make the enforcement efforts.  Public Works is not gonna do it.  The Mayor’s office is not gonna do it.  The Civil RelationsCommission is not gonna do it.  We know that, because we’ve talked, and we’ve asked, and we’ve begged, and nothing gets done.  And this is nothing against Alex, we all know he’s committed to do his work, we hear him at these meetings, and efforts.  But he’s beholden to the Mayor.  Just as Brenda is, and Civil Relations Commission staff.  And, Jonathan, you’re appointed by the Mayor to be on the Commission Advocacy Board.  And of course, Public Works, they’re also city government . . . and the state Civil Rights Commission is beholden to the Governor–and don’t get me started on him–and these politicians work together, states and cities.  It may be time to file with the federal government, and stop the banging of our heads against this Mayor’s wall.  So . . . that’s what I wanted to say here, tonight.  Mr. Chair.”

I’m furiously note-taking.

​“Well, Jonah,” Jonathan slightly-laughs, “just because I’m on a Mayor-appointed board doesn’t mean that I advocate for us any less.  There definitely is the role of enforcement, and, as you and anyone should know about me, I’m an attorney, I work directly with the courts, and litigation can certainly work in some instances.  The problem with the courts, and with the administrative law processes, as you know, is that it can take years to get a judgment on a case, and by that time, all the original players are gone, moved on, moved out of state, or, in some cases, have even died,” Jonathan continues with a slight laugh, “before someone can even think about getting the remedy for the damages they’ve incurred.  I know talk can be cheap, or can be viewed as cheap, but at least a few of the issues we used to talk about here at these meetings have been addressed.  And some for the better, just by open lines of communication with the respective agencies and their directors.  And that includes with the Mayor’s deputies, or at least a few of them . . .”

Mason rocks back and forth with his body wildly in his motorized wheelchair . . .

About the Author: Nick Valenzuela

Photo description: main with short gray hair and glasses, wearing a white shirt

A Los Angeles native who grew up in Louisville, Kentucky, Nick Valenzuela worked a 20+ year career investigating housing discrimination complaints for non-profit fair housing advocacy & municipal government enforcement agencies, and all in tandem with the United States Department of Housing & Urban Development. He’s fully-investigated several hundred housing discrimination & hate crime complaints; coordinated thousands of systemic & complaint-based rental, sales, mortgage lending, and insurance tests in auditing the housing industry; and, navigated administrative hearings, state & federal court litigation (including benchmark 6th Circuit Court of Appeals cases reaching the threshold of the United States Supreme Court), and conciliation / negotiated settlement agreements in order to resolve discrimination cases.

In addition, Nick worked as a Building Commissioner and a Senior Planner for municipal governments in central Indiana. In 2018 he published his debut novel, Lack of Appeal, a quasi-memoir of literature based on his experiences in discrimination investigation.”Nick graduated from HUD’s five-week National Fair Housing Training Academy as a certified fair housing investigator (the highest certification in the field) and has a liberal arts degree from the old Bellarmine College. He’s married to the county library director where they live in Indiana, and he constantly vows to read more books.


Nick is also a person with a physical disability: specifically, I have musculoskeletal spinal disorders significantly impairing more than one major life function.

5 Political Campaigning Tips for Candidates With Disabilities

 

Many people with disabilities want to see changes in their communities. However, running for office to enact those changes can seem like a daunting task in a society with so many barriers. But people with disabilities can make a positive impact by getting involved in politics. And with resources from advocacy organizations like Indiana Disability Justice, running for office and winning is entirely possible! If you’re interested in launching your own campaign, follow these steps to turn your dream of running for office into reality.

 

Register for the Ballot

 

First, you’ll need to research ballot access rules for candidates in your state. Each state has its own rules, and you’ll have to meet every requirement and submit all of the necessary paperwork to earn a spot on the ballot. Once you’ve taken care of these tasks, it’s time to assemble your team!

 

Choose Your Team

 

You can’t run your campaign entirely on your own – you need a great team around you! Even if you have a limited budget, Aristotle recommends hiring a fundraiser, a campaign treasurer or accountant, and a voter contact manager at a minimum. You could also consider bringing a campaign consultant or digital marketing expert on board.

 

Before choosing your team, you’ll want to establish an organized system so that you can keep track of staff productivity and even pay them easily. Choosing platforms that manage field personnel effectively through GPS mapping can give you better visibility of their activities on the campaign trail, which, in turn, makes it easier to schedule staff movements and shuffle tasks when needed.

 

Finalize Your Platform

 

You might have vague ideas for key policy items in your platform, but now is the time to stamp out the details. By conducting research on local voters’ positions and concerns, you’ll be able to determine which issues are most important to the people in your community. This will help you polish your platform and decide which policy proposals to highlight in your advertising strategy.

 

Promote Your Campaign Online

 

Today, political campaigning has gone digital. While print, TV, and radio advertising still matter, campaigning online is a low-cost option that will expand your reach. You’ll need to build a campaign website, set up social media accounts for your campaign, send out an email newsletter with campaign updates, and invest in paid advertising across popular social media platforms. You can also use social media to network with organizations that fight for disability justice and let them know about your campaign!

 

Plan Accessible Campaign Events

 

You can move forward with a variety of fundraising methods, but fundraising events will allow you to spend time with your potential future constituents face-to-face. Get in touch with venues in advance to discuss your necessary accommodations. And to ensure your events are accessible for all who wish to attend, EventMB recommends planning for ease of movement, providing appropriate signage and interpreters for those who are visually impaired or deaf, and making sure that service animals can accompany their owners.

 

At events, you can form real connections with your voters. While it is not a requirement, you can even share your story of living with a disability and how it has informed your political views and overall campaign platform.

 

Today, the voices of people with disabilities are needed to influence change. By getting involved with the political process, people with disabilities can shift policy and transform society for the better. With these tips, you’ll be well prepared to get your own campaign off the ground!

 

Are you looking to connect with other people with disabilities or find supportive resources? Indiana Disability Justice is working for education, policy change, and advocacy. Subscribe for email updates through our website today!

 

Photo via Pexels

About the Author:

Ed Carter has worked with clients of all ages, backgrounds and incomes. About 10 years into his career, he saw a need for financial planners who specialize in helping individuals and families living with disabilities. www.ablefutures.org

COVID and Being Medically Fragile with a Disability


Hi, my name is Meishy and I live at home with my mom, Cheryl. She is helping me write
this because I am a quadriplegic and unable to write and dysarthric and unable to speak. However, I want to tell you about my experiences of surviving in the world of Covid 19. I know all of you are having to survive this as well, but I am on a ventilator 24 hours a day, so if I get this virus, I have a 99% chance of dying, so that is scary to me. I want to tell you about all the things people have done to try to protect me and keep me safe so you know what people can do to help keep you safe too.


I have not left my room since February 18 of last year when I went to see Dr. Tolley at the pain clinic at Riley Hospital. That was right before Covid burst on the scene. In March I was told by my doctors that I needed to stay in my house and not leave for any reason; that my mom, who is a nurse, and my nurses would need to take care of any problems at home. The doctors made sure that I had all the medications that I needed (antibiotics, meds to thin my mucus, etc.) were on hand so they could be started if I needed them so I did not have to make a trip to the emergency room. I am a palliative care patient because I no longer have any veins that are good enough for IVs, so all my antibiotics must go through my stomach tube.
I have needed these medications a couple of times during my isolation period, and it has been wonderful to not have to go to the hospital to get them. My doctors have also been great about doing all my doctor visits via virtual visits. Mom holds the phone up and we talk with the doctor about what has been happening with me and we are able to do our appointments that way. It has been amazingly effective.
Another important thing is that the only people that I have seen since I left the house are my mom, my two nurses, Steve and Shannon, my therapist Jaime, and my aunt Susan. All of them do things like wearing masks and gloves when they get close to me if they are not feeling well. Mom even had to take care of me in November when she had Covid and managed to keep me from getting sick. She wore her mask, her gloves, and washed her hands a lot. She also kept herself in the other room except when I needed something bad, just so she could keep me safe. I did not get sick at all.
I cannot say it has not been a little lonely, but I have my iPad and my DVDs to keep me busy and happy. Those are the things that I really enjoy. I plan to keep on doing what I am doing for as long as I need to do it, and I hope you will all do the same. Please remember that masks and social distancing do work. I am proof of that and stay safe.

Woman with brown skin and long black hair, wearing a pink dress with a fierce look on her face.

About the Author:

Meishy was born in Philadelphia and lived in a foster home there until she met her adoptive mom. They flew home to be a family on 9/20/2001, right after the planes started again. Meishy attended Shelbyville High School. She loves all things Disney, but especially the princesses. She spends her days watching movies and surfing the internet.

Movement

Joyful Sweep

Joyful sweep is when the body is sweeping off of the surface. When you look at the image you cannot see the full body, but you see different pieces of limbs moving throughout the surface. There are small pockets of paint, mostly primary colors, coming together and depicting a human figure moving softly through the surface on a white background. Pencil markings are scribbling throughout the surface in the background. The figure is playing some type of sport almost as if he is playing soccer.

Freedom Dance


Freedom Dance is moving through the atmosphere without the effect of gravity. White and yellow are the most dominant colors throughout the surface. These colors create warmth throughout the painting.The figure is far to the upper right side of the canvas. Depicted in tan and maroon, the figure arches upward from the bottom right corner of the canvas towards the upper left corner. The figure stands on one leg with the other leg reaching out the side and arms stretched getting ready to fly.

Développé  

Développé is when the body is transferring all the energy from within to the surrounding spectators. The delicate figure is mostly surrounded by a white surface. The figure with her leg stretched upwards is depicted in a peach and orange tulle skirt that explodes outwards to express the movement of the dancer. The main focus point of the painting is the center where all the movement originates. Her arms and hands are stretched upwards as if she is reaching for the sky.

About the Artist: Johnson Simon

A man with medium brown skin, with short black hair, wearing glasses, and smiling broadly in front of a white background.

I have always been interested in body movement and when an opportunity was presented to me to attend a dance recital exhibition nine years ago on the Western Michigan University campus, I was excited to attend.  Viewing the dancers and their freedom of movement inspired me to display movement in my painting.  I was stimulated to create my first dance focused expressionistic painting.  Dancing is to me, the art of moving lightly and quickly with the skill of communicating my emotion.  As someone with a disability, movement impacts me on a daily basis.   In order to help gain more knowledge of motion and movement, I used several sources of movement for research and to enhance ideas. I watch several videos of dancing to help in determining the type of movement I wanted to present in my painting.  I studied the movement of people: walking, running, swimming, and sky diving.  I then had my own walking and stepping up and down stairways videotaped. I discovered that my walking has a rhythm to it.  To further enhance my study of movement I attended several dancing classes to sketch the dancer’s movements for effect.  My painting is a representation of me dancing.  I am able to make broad and sweeping motions with my paint brush and transfer that motion and feeling of movement onto the canvas to express myself.  In my artistic work, I am able to move freely about without limitations.  I use bright colors to represent the body movement throughout the surface.  

My artwork is a way for me to express or transfer how I would move freely and uninterrupted. I can run, walk, jump, and I can dance without being bound to limitations when I paint. Zm and draw. I believe the paint brush is an extension of me and represents my idea of movement on canvas.

www.artbyjohnsonsimon.com